"I've had doctors, a couple of doctors, who have questioned a decision about doing something for Olivia, kind of on the basis of: Is she worth it? I've looked them in the eye and said, 'Don't you dare say that to me. Do you have children? What would you do for your child?' I think society can look at a person like Olivia and say, 'What can she contribute?'"
--Tamara Welter, mother to Olivia, aged 21
What does it mean to be human?
What does it mean to be alive?
What does it mean to be productive or not?
Does it matter?
Above all, this is my child.
Read more and listen to this story -- it brings up just about everything that we parents of children with severe special healthcare needs face.