I received a letter several weeks ago stating that Sophie's Community Based Instruction class (hereby called CBI) was going to be split up and the ninth and tenth graders would be starting with a new teacher in a new room and their program would no longer be CBI. Sophie just transitioned from middle school to this school last fall, and the reason why we enrolled her there, besides for the fact that it's our neighborhood high school, is that we really liked the teacher and the idea that Sophie would be active and out in the community. We have less than three months of school left, and the idea of her leaving this class and, effectively, starting all over with a brand new teacher made me simultaneously upset and weary to the bone.
Why? Well, as anyone dealing with school districts might know and anyone dealing with the Los Angeles Unified School District knows for sure and anyone dealing with special education issues knows for double-sure, one must strip naked, push one's heart to the outside of one's shirt and grow several layers of thick skin to deal with the powers that be.
I began making calls the following day and spoke to roughly five individuals who, when they weren't passing me back and forth from the actual high school administration office to Downtown (where the entire district offices lie and which perhaps resembles a windowless OZ, peopled with strange and striving automatons, terrified of climbing out of the little boxes in which they work) peppered their conversations with stock phrases like "it's District policy" and "we believe we know what's best in this situation," and "where did you hear that?" "you'll have to speak to Downtown," and "you'll have to speak with the school principal" and my favorite of all:
If we give you what you believe is right for your child (stay in her classroom with her teacher), everyone will want that as well.
This was about the time I needed to stamp this official's desk with
I had to apologize, eventually, to that official for interrupting her so much (it's one of my - wince - biggest faults). I was angry and very, very frustrated. I finally spoke with the principal and he told me, wearily, that he'd get back to me this week. He sounded so much like the Man Behind the Curtain that I felt a little sorry for him. I feel sorry, actually, for anyone that has to deal with me when I'm angry and frustrated.
I learned from a special education advocate that a child's education program -- in this case, the Community Based Instruction -- cannot be changed without the parent's written approval on the IEP.
I learned today that Sophie will be staying in the class where she is thriving. Apparently, I won. Although fighting about such absurd things makes me feel more like this:



21 comments:
I am not saying that you or your daughter deserves that type of treatment, but after hearing about everything that has gone on, I definitely think someone deserves to be passed around relentlessly through all the wrong channels.
and maybe I missed something, but what does "WTF" stand for?
"If we give you what you believe is right for your child (stay in her classroom with her teacher), everyone will want that as well."
Technically, in the world of IEP language, that statement is illegal.
what the fuck!?
doesn't it just wear you out to fight so hard for what it is obvious should just BE? i'm glad you won. i'm glad you are sophie's advocate and so good at it. but wtf!? so many damn battles that make no sense. i get exhausted for you. hang in there. love.
Right, they absolutely cannot change Sophie's placement without a change in her IEP. Whew, I was getting all riled up on your behalf until I got to the "cannot be changed without the parent's written approval on the IEP" part.
I am sorry to say that frustration and anger does not bring out the best in me either. My husband and I finally figured out it was best to divide and conquer when it came to contentious IEP meetings. I would come up with the strategy to get what we wanted from the district and write all the key phrases of eduspeak for my husband to use (phrases like, "we feel the district is no longer in compliance with our daughter's IEP") and my husband would go in and deliver the message in his calm, yet forceful, way.
Left to me there would have been wailing and gnashing of teeth. And possibly even swearing.
I have heard a similar story from a friend of mine with a son who has autism (he is now 21). She had to fight tooth and nail for most years of his middle/high school years because of changing programs, teachers, campus location changes from school to school (what school wants to have this program this year?...awful!). Her husband was diagnosed with brain cancer during this time and eventually passed away in less than two years of that diagnosis yet she had to fight to have a quality program and education for her son. It made me very sad, angry and frustrated when she talked about what she had to do. Through it all she held her head up and pressed forward.
I marveled at her...and was in awe. I feel the same way for you Elizabeth.
Your commenter above is correct - that statement is illegal.
You should email me any time you begin your IEP battles. I know all the different angles.
My current infuriating battle is advocating on my son's behalf in the district where I also work. Very very very difficult for me to point out how his IEP is not honored... with people who are my colleagues and administrators.
who would have thought a little girl like you could do away with allllll my wickedness....
Honey- you just keep those ruby slippers at hand. You sure know how to use 'em.
again,
mind blown.
I am sorry you go through this. It is inhumane.
"anyone dealing with special education issues knows for double-sure, one must strip naked, push one's heart to the outside of one's shirt and grow several layers of thick skin to deal with the powers that be" - That's exactly how it is. I get tense just reading about it because I hate.the.fight. I just hate it. I'm so tired of fighting for so many years - all the damn phone calls and emails and meetings - gah! I'm VERY glad that things worked out okay for Sophie, because if they didn't, I'd be right there with you under that house. I usually am! xo
I think that the problem is seldom in the fighting. The problem is who or what we have to fight with, for, against, etc.
Two people whose interest is the best possible solution will reach an entente cordiale without frustration, anger or "put on hold and discard" telephone solution. The opposite inevitably will happen when only one party has the right reasons and the other is not willing or worse, not capable of seeing the reasonable way out of the rabbit hole they have created.
If you are right and they are not that is often the sign of defiance to a bureaucrat. I am sorry to hijack your comments but this is still the best definition I ever read of a bureaucrat and your traveling through the maze in their rabbit hole today reveals that nothing much has changed since this was written:
"Old bureaucrat, my comrade, it is not you who are to blame. No one ever helped you to escape. You, like a termite, built your peace by blocking up with cement every chink and cranny through which the light might pierce. You rolled yourself up into a ball in your genteel security, in routine, in the stifling conventions of provincial life, raising a modest rampart against the winds and the tides and the stars. You have chosen not to be perturbed by great problems, having trouble enough to forget your own fate as a man. You are not the dweller upon an errant planet and do not ask yourself questions to which there are no answers. Nobody grasped you by the shoulder while there was still time. Now the clay of which you were shaped has dried and hardened, and naught in you will ever awaken the sleeping musician, the poet, the astronomer that possibly inhabited you in the beginning."
— Antoine de Saint-ExupĂ©ry (Wind, Sand and Stars)
Yay. Sophie has you. You are amazing. I hope you are having a celebratory glass of something.
I have been,on occasion, referred to as the Wicked Witch of the West ... by my mother no less,and quite frankly,I wear that title proudly sometimes.You do the same my friend.
Ah, yes. The old "we believe we know what's best for your child" comment. What makes my blood boil is the idea that there are MANY parents out there who hear that and believe it. Otherwise, why would they keep saying it???
I know the battle can be wearisome. I wish you didn't have to fight. But I'm so glad Sophie has a mom who is willing and able to fight for her. I hope you gave yourself a big gold star or a pat on the back or the equivalent (in my book that would be some good dark chocolate) as a reward for your labors. You deserve it.
A person shouldn't have to fight to breathe. Continued battles are wearying. I don't blame you for being frustrated and angry.
P.S. Have you seen the movie, "Temple Grandin" yet? Wonderful film, and a mother who knew how to fight for her child. I think you'd like it.
To the victor go the spoils! Congratulations! I can only hope that your conversations with each of these people enlightened them to some extent about the way families feel during times of substantial change like this. Hopefully, even one of the district employees was able to open up and let a little of your wisdom (albeit frustrated) seep in.
Draining, yes...but so AWESOME that you prevailed!
I don't know where you find the stamina. Although, I know I would find all the stamina I needed to help my own child. XO
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