tag:blogger.com,1999:blog-4863417462909147257.post4258736020376161913..comments2024-01-01T20:33:52.554-08:00Comments on a moon, worn as if it had been a shell: My NBC Dateline Notes and the Ode to Santos DumontElizabethhttp://www.blogger.com/profile/03313726816776097840noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-4863417462909147257.post-9746098212578325722015-06-09T14:14:23.254-07:002015-06-09T14:14:23.254-07:00I appreciated the Dateline episode. We just moved...I appreciated the Dateline episode. We just moved from Virginia so I know most of the moms and they are great women who have helped me a great deal on our Dravet journey. I always appreciate when I see you take a stand on some of the FB cannabis pages. It's one thing to argue against CBD laws its another to bad mouth and sling names through the mud. I totally get the argument and anger for CBD only laws. I'm frustrated too here in Utah where I'm finding I will need thc/thca and can't get it but I know without a doubt CBD only was the only way to go. Anything else would have failed. We are hoping to expand it next year and add in THCA. It's better than nothing. As for the placebo effect comment that really got under my skin. Families in Utah just had to submit our success and failure stories and most of them are overwhelmingly positive, some of them miraculous even. I guess all these parents are just making this up? And my own nuero when I tell him what success we've had all he ever says is how about we add in Onfi. Uggg, makes me want to scream.Lindsay Rosehttps://www.blogger.com/profile/08599692945025100322noreply@blogger.comtag:blogger.com,1999:blog-4863417462909147257.post-82672419413483276042015-06-08T19:45:23.414-07:002015-06-08T19:45:23.414-07:00Have joined the Coalition for Access Now and sent ...Have joined the Coalition for Access Now and sent a letter to my Utah representatives.AnnDeOhttps://www.blogger.com/profile/06924496553474813816noreply@blogger.comtag:blogger.com,1999:blog-4863417462909147257.post-52271654688387255212015-06-08T11:56:03.743-07:002015-06-08T11:56:03.743-07:00Not sure if you keep up with laws across the count...Not sure if you keep up with laws across the country, but MN went legal June 1st. The product is ready for distribution, not a great selection, but CBD and THC products available. However, only a handful of doctors are willing and/or being allowed by their clinics to certify us. Supposedly the Dateline special was supposed to air on our local news station and was cancelled. I called the television station and they don't even answer their phones. Conspiracy? It's heartbreaking and frankly unbelievable the powers that be don't care about the suffering. GRRRR.Anonymoushttps://www.blogger.com/profile/17533205834950854358noreply@blogger.comtag:blogger.com,1999:blog-4863417462909147257.post-55954614351649402322015-06-08T10:47:59.115-07:002015-06-08T10:47:59.115-07:00I watched it. Wow. I never knew. I had never se...I watched it. Wow. I never knew. I had never seen a seizure. I didn't know what you go through, daily. Eyes wide open, now.bakerfamily5https://www.blogger.com/profile/06033147883454469574noreply@blogger.comtag:blogger.com,1999:blog-4863417462909147257.post-30087408689193259622015-06-08T10:22:39.435-07:002015-06-08T10:22:39.435-07:00The tide is turning. And thank you for the descrip...The tide is turning. And thank you for the description of the "Ode" piece - it interjected some harmony into my morning. Lovely image. kariohttps://www.blogger.com/profile/10150537989886423212noreply@blogger.comtag:blogger.com,1999:blog-4863417462909147257.post-17607669360787867292015-06-08T08:43:44.641-07:002015-06-08T08:43:44.641-07:00Blogger ate my comment. Basically what I said was-...Blogger ate my comment. Basically what I said was- that doctor sounded like an ass and I doubt she convinced anyone with that bullshit. <br />And that the Stanley brothers are cowboy rockstars.<br />And that you are too. <br />I thought the program was very well done. That moment when the guy dumped all his pills on the ground was most enlightening. Very excellent image. Ms. Moonhttps://www.blogger.com/profile/09776404747858099919noreply@blogger.comtag:blogger.com,1999:blog-4863417462909147257.post-1108153799999769552015-06-08T07:30:03.759-07:002015-06-08T07:30:03.759-07:00It's been quite a journey to find that sweet s...It's been quite a journey to find that sweet spot but I'm ever so hopeful we will!<br />MaryLou Connollyhttps://www.blogger.com/profile/10487084753413140281noreply@blogger.comtag:blogger.com,1999:blog-4863417462909147257.post-79244248253332940752015-06-08T07:06:59.597-07:002015-06-08T07:06:59.597-07:00That artwork is fascinating.
I'm sure it'...That artwork is fascinating.<br /><br />I'm sure it's frustrating and infuriating to deal with bone-headed lawmakers, but your dedication to this cause is a wonderful thing.Steve Reedhttps://www.blogger.com/profile/11684120060438252945noreply@blogger.comtag:blogger.com,1999:blog-4863417462909147257.post-63514258031832992012015-06-08T05:29:09.428-07:002015-06-08T05:29:09.428-07:00You make me wonder if my sister's doctors have...You make me wonder if my sister's doctors have ever considered cannabis to stop her epilepsy. Some of the drugs they put her on make her more aggressive. I'm guessing that might not happen with cannabis. Like the previous commenter says, she's been on so many drugs anyway, I'm sure they have side effects, too.Mwahttps://www.blogger.com/profile/00954216492730746581noreply@blogger.comtag:blogger.com,1999:blog-4863417462909147257.post-30254539141493846872015-06-08T01:50:10.650-07:002015-06-08T01:50:10.650-07:00I watched with rapt attention, Elizabeth. Thought ...I watched with rapt attention, Elizabeth. Thought those parents of the children suffering from seizures, sometimes hundreds a day and more, were heroes.<br />As far as the doctor, just after Dateline ended when I was channel surfing I heard an ad, which I didn't pay much attention to, but when I stopped fast forwarding I heard the final sentence of the ad. "Long term side effects are not known". To my way of thinking most drugs are thus. No one has done a 75 year study on them, or have they and I missed it? She didn't sound convincing to me at all.Kathiehttps://www.blogger.com/profile/05334174033025219569noreply@blogger.com