tag:blogger.com,1999:blog-4863417462909147257.post5472091441515498493..comments2024-01-01T20:33:52.554-08:00Comments on a moon, worn as if it had been a shell: No Sh@%!, Sherlock!Elizabethhttp://www.blogger.com/profile/03313726816776097840noreply@blogger.comBlogger19125tag:blogger.com,1999:blog-4863417462909147257.post-77944557823330462672011-08-17T23:44:23.792-07:002011-08-17T23:44:23.792-07:00Seriously? They spend money on this shit! and stud...Seriously? They spend money on this shit! and studies liike the family that eats together is closer and if you read to your child 15 minutes a day they will have higher academic achievement. I'm sick of these studies. Anxiety. No kidding.Sometimes you don't even realize it like tonight when I called The Teenager and she didn't answer and I called her again and then I thought my God is she having a seizure and go tearing up the stairs. I had no clue how easily the thought triggered massive anxiety apparently always under the surface.SECRET PEPPER PERSON:https://www.blogger.com/profile/06434583043459305729noreply@blogger.comtag:blogger.com,1999:blog-4863417462909147257.post-61464944890325200902011-08-17T11:27:58.858-07:002011-08-17T11:27:58.858-07:00I agree with others that say that it is important ...I agree with others that say that it is important to scientifically document things that communities like this one know intuitively. But I also share your frustration. It is such an inefficient way to create knowledge. There is this study that is similar with a little less of the NSS factor. http://www.ucsf.edu/news/2011/02/9431/aging-telomeres-linked-chronic-disease-and-health "In their initial study of caregiver mothers of chronically ill children and control mothers of healthy children in 2004, perceived psychological stress – and the number of years of caring for their chronically ill children – was associated with shorter telomere length and less telomerase activity in these mothers, providing the first indication that stress may have an impact on telomere maintenance."ruraldreamshttps://www.blogger.com/profile/15752935163204812577noreply@blogger.comtag:blogger.com,1999:blog-4863417462909147257.post-6678434945882472882011-08-17T06:28:42.022-07:002011-08-17T06:28:42.022-07:00Not at all surprising. I did not grow up with the ...Not at all surprising. I did not grow up with the disease. I didn't have my first bout with it until I was 23 so my family didn't have to live with it and I don't think they have actually ever seen me have one. My sister and I are not close and well...long story. I have had a couple boyfriends witness them. That is about it. At any rate, I think it is difficult for anyone who loves a person to see them lose complete control of consciousness. You fear for their well being and their life at every turn. The anxiety for an adult with epilepsy is a daily thing, but you learn to live with it. I think that anxiety is transferred to the parent when raising a child.<br />NoelleNoelle Clearwaterhttps://www.blogger.com/profile/15879264907115107737noreply@blogger.comtag:blogger.com,1999:blog-4863417462909147257.post-14370450619592186792011-08-16T17:25:41.498-07:002011-08-16T17:25:41.498-07:00Quelle surprise!Quelle surprise!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4863417462909147257.post-8400457364633825482011-08-16T16:39:39.151-07:002011-08-16T16:39:39.151-07:00Wow. They could have asked any of us moms and got...Wow. They could have asked any of us moms and gotten that information straight from the horses mouth.ANewKindOfPerfecthttps://www.blogger.com/profile/11978293330074662766noreply@blogger.comtag:blogger.com,1999:blog-4863417462909147257.post-90725017567149261602011-08-16T16:00:59.505-07:002011-08-16T16:00:59.505-07:00SK3 -- I know what you're saying, but studies ...SK3 -- I know what you're saying, but studies like these HAVE been done and finished years and years ago. Physicians, parent advocates and those who advocate for children with special healthcare needs have been talking about this stuff for decades -- and have quantified it as well. Interestingly, epilepsy and its effect on families is one of the most poorly understood and funded of all diseases -- for a myriad of reasons. I don't hold any hope that money will EVER be allocated for families of children with special needs -- as we speak, any money that has been allocated is not just dribbling but actually gushing away. Obvious studies like this one will probably only serve to affirm what most of us feel -- and that's important. I doubt that they will be able to be used, though --Elizabethhttps://www.blogger.com/profile/03313726816776097840noreply@blogger.comtag:blogger.com,1999:blog-4863417462909147257.post-38411291259209996212011-08-16T15:19:51.141-07:002011-08-16T15:19:51.141-07:00Helloooo Captain Obvious ...Helloooo Captain Obvious ...jeneva22https://www.blogger.com/profile/14796890614666454443noreply@blogger.comtag:blogger.com,1999:blog-4863417462909147257.post-71915219534150315982011-08-16T15:06:41.495-07:002011-08-16T15:06:41.495-07:00I believe you summed it up nicely in your title bu...I believe you summed it up nicely in your title but Angella is right- you can keep that study in your toolbox to pull out and use as needed.Ms. Moonhttps://www.blogger.com/profile/09776404747858099919noreply@blogger.comtag:blogger.com,1999:blog-4863417462909147257.post-7221927720579044302011-08-16T14:23:27.462-07:002011-08-16T14:23:27.462-07:00Geez, I wonder if other people with other children...Geez, I wonder if other people with other children with special needs. Maybe they should spend a huge with amount of money for a similar study instead of spending it how it studying the children with special needs.Birdiehttps://www.blogger.com/profile/03479872783727855901noreply@blogger.comtag:blogger.com,1999:blog-4863417462909147257.post-23086806283309703302011-08-16T14:12:42.920-07:002011-08-16T14:12:42.920-07:00now you can cite this study as you fight for benef...now you can cite this study as you fight for benefits in the future. would that it would help!37paddingtonhttps://www.blogger.com/profile/12400464105403622384noreply@blogger.comtag:blogger.com,1999:blog-4863417462909147257.post-6425337606826640992011-08-16T14:12:18.323-07:002011-08-16T14:12:18.323-07:00Oh dear.
What's next? The Earth is round? Heat...Oh dear.<br />What's next? The Earth is round? Heat rises? The Pope is Catholic?Denise Emanuel Clemenhttps://www.blogger.com/profile/10982725113569943337noreply@blogger.comtag:blogger.com,1999:blog-4863417462909147257.post-11823810601344823922011-08-16T14:07:27.783-07:002011-08-16T14:07:27.783-07:00I agree with SK3 - while it often amazing at what ...I agree with SK3 - while it often amazing at what sorts of studies do get funded or supported by universities - it's important for these questions to be quantified.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4863417462909147257.post-12391778672046249202011-08-16T13:58:21.225-07:002011-08-16T13:58:21.225-07:00Although I totally understand your response, it...Although I totally understand your response, it's important that studies like these are carried out, even though people who are intimately involved with the issue can predict what the outcome will be. However, when it comes time to allocate funds for various projects, the first question that is asked is "how do we know this is really an issue? Has any research been done to demonstrate that it's really a problem?" And then they look around, and find a study like this. In this day and age where money is not flowing freely for special needs issues, it's important to have studies like this to justify the necessary financial support.SK3https://www.blogger.com/profile/02854380152028532956noreply@blogger.comtag:blogger.com,1999:blog-4863417462909147257.post-34146089647092578932011-08-16T13:37:17.476-07:002011-08-16T13:37:17.476-07:00Ditto everything above.Ditto everything above.Clairehttps://www.blogger.com/profile/13070297384173508509noreply@blogger.comtag:blogger.com,1999:blog-4863417462909147257.post-90825423154299827862011-08-16T13:32:38.930-07:002011-08-16T13:32:38.930-07:00What a waste of precious time and one penny spent,...What a waste of precious time and one penny spent, on that stupid ass study.<br /><br />But I agree with you,what do we do about it? I have surrounded myself with an intimate group of beautiful friends that sure would benefit from a solution.Heatherhttps://www.blogger.com/profile/04209967185741239050noreply@blogger.comtag:blogger.com,1999:blog-4863417462909147257.post-3011723665555958262011-08-16T13:05:49.329-07:002011-08-16T13:05:49.329-07:00Well, maybe in TURKEY, but here in the good old US...Well, maybe in TURKEY, but here in the good old US of A we caregivers are just dancing through rainbows all the time. <br /><br />Or maybe we aren't. Perhaps we need a study.<br /><br />P.s. I find it hilarious that my captcha word to post this is "focke"Maggie Worldhttps://www.blogger.com/profile/12578683202372124444noreply@blogger.comtag:blogger.com,1999:blog-4863417462909147257.post-49698168008698366432011-08-16T13:03:56.353-07:002011-08-16T13:03:56.353-07:00Duh.
Support systems for caretakers are so import...Duh.<br /><br />Support systems for caretakers are so important, especially when it comes to those individuals who care for others with chronic and unpredictable illnesses. I suspect that if many of these caretakers were tested for PTSD, it would be prevalent throughout the population.<br /><br />Love.kariohttps://www.blogger.com/profile/10150537989886423212noreply@blogger.comtag:blogger.com,1999:blog-4863417462909147257.post-26483666321045553152011-08-16T12:53:07.194-07:002011-08-16T12:53:07.194-07:00Wow. Like a study was needed for this one--just ch...Wow. Like a study was needed for this one--just check the Internet, yo.Katyhttps://www.blogger.com/profile/02189007616883663434noreply@blogger.comtag:blogger.com,1999:blog-4863417462909147257.post-90186780289270663322011-08-16T12:12:07.364-07:002011-08-16T12:12:07.364-07:00Who would have thought.Who would have thought.erikahttps://www.blogger.com/profile/03048369118376287016noreply@blogger.com