tag:blogger.com,1999:blog-4863417462909147257.post8302686758313174036..comments2024-01-01T20:33:52.554-08:00Comments on a moon, worn as if it had been a shell: ACM***Elizabethhttp://www.blogger.com/profile/03313726816776097840noreply@blogger.comBlogger14125tag:blogger.com,1999:blog-4863417462909147257.post-33330913131025332202014-07-05T06:07:16.891-07:002014-07-05T06:07:16.891-07:00Had a similar experience with Nicholas at his 6th ...Had a similar experience with Nicholas at his 6th grade graduation, he was screaming bloody murder. I feel your pain fellow soldier.L. Petershttps://www.blogger.com/profile/09495560962339948104noreply@blogger.comtag:blogger.com,1999:blog-4863417462909147257.post-45876479816991212382014-06-30T15:49:22.379-07:002014-06-30T15:49:22.379-07:00I call it my fuck off face when I have to deal wit...I call it my fuck off face when I have to deal with Miss Katie having a meltdown in public. Strangely enough, people don't approach us:)<br /><br />I don't care anymore if she makes noise, or drools, or people stare at her. I find it quite amusing when small kids stare at Katie. Kids as young as a year old can tell there is something wrong with Katie and they look. It sure makes their parents squirm though. I don't mind kids asking about Katie, I just tell them her brain doesn't work right. <br /><br />I admire you Elizabeth because I couldn't keep on being Katie's fulltime caregiver after she was sixteen or seventeen. There were days when I thought of driving into an oncoming semi to put both of us out of our misery. <br /><br />Now I can be her mom instead of her caregiver which is nice. I felt guilty and bad for a long time but I'm ok with it now.<br /><br />Thinking of you and sending hugs.My life so farhttps://www.blogger.com/profile/16721270441968035994noreply@blogger.comtag:blogger.com,1999:blog-4863417462909147257.post-31116024484541186552014-06-30T15:44:25.040-07:002014-06-30T15:44:25.040-07:00You're onto something with that calendar idea....You're onto something with that calendar idea.<br />Carrie Wilson Linkhttps://www.blogger.com/profile/01586157395539583862noreply@blogger.comtag:blogger.com,1999:blog-4863417462909147257.post-27093096382509805552014-06-30T07:54:28.162-07:002014-06-30T07:54:28.162-07:00There aren't many posts people write that get ...There aren't many posts people write that get me tearful. By the time I sit down to the Internet, I don't have it left in me. No offense, just a statement of fact. I'm usually done weeping by the time I get here.<br /><br />This one though, had a few streamers. I have an unfinished thing about an experience in a restaurant over the weekend and many of the feelings are eerily similar, some different obviously, since Bennett can get up and walk around on his own, and very well. Bennett is only 6, and not much has changed for him since he was 2. Some has, but not as much as people think. Projecting forward to 18, I am scared beyond shitless.<br /><br />I read blogs like yours, Claire's, Single Dad's, all veterans...doing this for YEARS all with older children. You have this series you write called How We Do It. Frankly...I don't know that I CAN do it...blogzillyhttps://www.blogger.com/profile/08268388544631653375noreply@blogger.comtag:blogger.com,1999:blog-4863417462909147257.post-56897372746483375712014-06-30T05:44:42.089-07:002014-06-30T05:44:42.089-07:00I know those moaning, complaining sounds. C. gives...I know those moaning, complaining sounds. C. gives us that gift on occasion when she's in a better place than usual. My daughter, P. can't tolerate them but I love them: Finally, communication! Something akin to speech! <br /><br />Often several gulps of water will soothe her and stop the moaning. Other times, if her brace and shoes were still on, then removing them does the trick. <br /><br />Sadly, her needs are very basic.<br /><br />And I've got a few great <b>staring-neighbors </b>anecdotes. One of them ends with my returning downstairs after dashing home for a second to find the staring five year old neighbor with a leg poised in mid-air, aimed at C. <br /><br />I suppose C. "started up" with her. (In my dreams.) The Sound of the Silenthttps://www.blogger.com/profile/09669598042879486343noreply@blogger.comtag:blogger.com,1999:blog-4863417462909147257.post-64073651756853755972014-06-30T05:38:31.210-07:002014-06-30T05:38:31.210-07:00Oh, that conversation you had in your head? I can...Oh, that conversation you had in your head? I can SO relate to that. Alicia Dhttps://www.blogger.com/profile/06244714478310893367noreply@blogger.comtag:blogger.com,1999:blog-4863417462909147257.post-16706360006764645062014-06-29T23:40:28.750-07:002014-06-29T23:40:28.750-07:00I bet a lot of people would commiserate and buy yo...I bet a lot of people would commiserate and buy your calendar! I'm sure it was good for Sophie to have a change of scenery even if she was vocalizing otherwise.Steve Reedhttps://www.blogger.com/profile/11684120060438252945noreply@blogger.comtag:blogger.com,1999:blog-4863417462909147257.post-68028963241854757012014-06-29T19:29:17.779-07:002014-06-29T19:29:17.779-07:00You are like no other mother, and of course, we ar...You are like no other mother, and of course, we are all alike in some ways. <br />You are like no other writer. I'll tell you that. <br />Sending great love. Ms. Moonhttps://www.blogger.com/profile/09776404747858099919noreply@blogger.comtag:blogger.com,1999:blog-4863417462909147257.post-51282443128528882532014-06-29T19:20:39.077-07:002014-06-29T19:20:39.077-07:00How could you NOT be angry? Resilience and humor ...How could you NOT be angry? Resilience and humor in the face of it; priceless. Mama Dhttps://www.blogger.com/profile/02486091328948046021noreply@blogger.comtag:blogger.com,1999:blog-4863417462909147257.post-49405519795859188682014-06-29T18:59:48.090-07:002014-06-29T18:59:48.090-07:00Oh wow Elizabeth. Your writing just gets more and ...Oh wow Elizabeth. Your writing just gets more and more amazing. This is heartbreaking and at the same time not a drop of self pity. There's humor even! You are wonderful. And such an inspiration for all caregivers. Sending you blessings, peace, and love. Barbaranoreply@blogger.comtag:blogger.com,1999:blog-4863417462909147257.post-29600021328937911502014-06-29T18:38:55.030-07:002014-06-29T18:38:55.030-07:00Oh wow...took my sophie to the big city aquarium a...Oh wow...took my sophie to the big city aquarium and whilst fishies swam in their watery numb silence, all I could think was...how long will she hold out, how long will she hold out, how long will she hold out...Clairehttps://www.blogger.com/profile/13070297384173508509noreply@blogger.comtag:blogger.com,1999:blog-4863417462909147257.post-39258717310494461242014-06-29T18:06:08.943-07:002014-06-29T18:06:08.943-07:00Not sure what I love more: your dark humor or Soph...Not sure what I love more: your dark humor or Sophie's curls. I am sorry it was a hard slog. I know the feeling well. Cool museum tho.Michellehttps://www.blogger.com/profile/16913761265582230554noreply@blogger.comtag:blogger.com,1999:blog-4863417462909147257.post-67220388233932902252014-06-29T16:12:50.522-07:002014-06-29T16:12:50.522-07:00Dear Elizabeth, I send my love.Dear Elizabeth, I send my love.Denise Emanuel Clemenhttps://www.blogger.com/profile/10982725113569943337noreply@blogger.comtag:blogger.com,1999:blog-4863417462909147257.post-17860668929941085452014-06-29T15:07:02.322-07:002014-06-29T15:07:02.322-07:00Dearest Angry Caregiver Mother, I love you.Dearest Angry Caregiver Mother, I love you.Andreahttps://www.blogger.com/profile/07247877396600721769noreply@blogger.com