tag:blogger.com,1999:blog-4863417462909147257.post9640070254890044..comments2024-01-01T20:33:52.554-08:00Comments on a moon, worn as if it had been a shell: Better SaidElizabethhttp://www.blogger.com/profile/03313726816776097840noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-4863417462909147257.post-20908494015509016842009-04-20T16:48:00.000-07:002009-04-20T16:48:00.000-07:00We're not dealing with epilepsy, just basal gangli...We're not dealing with epilepsy, just basal ganglia disease of unknown etiology (in the absence of any real diagnosis). But at one time, Robert was on 6 different meds, most of them given more than once a day. So the only thing I can add is my feeling that the word "f*ckin'" was not used nearly enough.jeneva22https://www.blogger.com/profile/14796890614666454443noreply@blogger.comtag:blogger.com,1999:blog-4863417462909147257.post-28423438508005247192009-04-20T07:38:00.000-07:002009-04-20T07:38:00.000-07:00Thank you for this link. I love his writing voice,...Thank you for this link. I love his writing voice, his passion and his honesty.Gbergerhttps://www.blogger.com/profile/08895779471612397202noreply@blogger.comtag:blogger.com,1999:blog-4863417462909147257.post-4384870769740857082009-04-20T06:58:00.000-07:002009-04-20T06:58:00.000-07:00Having just witnessed drug-induced clinical deliri...Having just witnessed drug-induced clinical delirium no less than two weeks ago with my son in the psych ward, where he still is today, I will have to say that I can absolutely relate to feeling horrible about providing so much medicine to a child. (By the way, the delirium wasn't caused by the administration of drugs at home, but the literally insane dose of sedatives they had to give him to quiet him in the ER.)<br /><br />My son, who has had one seizure that we noticed, is currently being weaned off Depakote. We've been using it as a "mood stabilizer." Until I read that Newsweek article, I didn't realize how much it slows someone's cognitive ability. Glad to have that getting washed out, if it's not needed.<br /><br />I'll agree that the epilepsy articles in Newsweek presented a very bleak perspective. I know -- who reads an article on a disease and feels uplifted by it? I get that it's "bad news." But they couldn't have made things sound worse.<br /><br />When it's your kid, it's a market of one. Overall stats seem overwhelming, and you care about what can be done for your kid and your situation. We all have hope to overcome the odds. On that point, in my estimation, they missed the boat.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4863417462909147257.post-66965371017349155472009-04-20T05:04:00.000-07:002009-04-20T05:04:00.000-07:00"...surpassed only by the drugs used to "fix," "cu..."...surpassed only by the drugs used to "fix," "cure," or "alleviate" it." I couldn't have said it better, myself. Thanks, Elizabeth.Brianhttps://www.blogger.com/profile/08644871512533099437noreply@blogger.com