Wednesday, November 13, 2013

The Face of Epilepsy



That's the face of epilepsy. Sophie had a seizure this afternoon, while walking with her aide. Her face hit the pavement despite the best attempt to keep it from doing so. Her nose is swollen, as you can see, and one side is caked with dried blood. This is the kind of thing that makes me despair, to tell you the truth, to feel the long tail trailing behind me. It's made of bumps and bruises, split open heads and helplessness. It's attached to me but not about me. It's about my child -- many children, actually, millions of them. I want to cry, give up, give in, but instead I'll lay Sophie gently on her back and wipe her nose with a warm cloth. I'll make her an appointment with the osteopath who will tend to her with healing hands. Her brothers will murmur poor Sophie, and that won't be pity or condescension but the truth.

15 comments:

  1. Ow. Poor dear Sophie. Heal well, sweet girl.

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  2. Her eyes say so much to me. Sad, mad, hurt, a yearning for the seizures to stop. I am sorry Sophie had yet another seizure and got injured. It is painful to see and hear about and to know you witness this repeatedly. I am so sorry. Sweet Jo

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  3. I'm so sorry. It touched me to read this, to see the photo, to hear her brothers words. I hope she heals up quickly from the bumps and bruises, and that the CBD oil gets there faster and faster.

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  4. I love you. You and Sophie have changed my world. That's just the darn truth. May she rest well tonight.

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  5. It's hard I'm sure, to watch her seize like this, for so many years, wishing you could take it on yourself instead of watching her. Sending hugs to you and Sophie.

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  6. I'm so sorry. I am struck by the piercing clarity of Sophie's eyes in that photo, and by the image in my head of you laying her down gently and wiping her bruises with a warm cloth. I hope she sleeps well tonight and heals and heals.

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  7. Oh, Elisabeth. My heart feels sad for Sophie but it aches for you too. I don't know how your mother's heart bears the weight of it all.

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  8. Oh, yikes. So sorry to hear this happened. :(

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  9. Scheisse. If only we had power enough to send kisses from Heaven and All that is Holy raining down on the both of you. I regret so much not being here and for you in correspondence. I hope you know my spirit is always wishing you a kick-ass, hunky, trail crew.I apologize for every minute my online absence has suggested otherwise because i think of, root and pray for you and Sophie (and of course those boys) so often.

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  10. I'm so sorry. The expression in her eyes is overwhelming. I know Sophie feels your incredible love. My love to you all.

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  11. oh dear oh dear----so very sorry--sending love

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  12. So sorry. We know epilepsy all to well. My son has it. Thankfully ours are few and far between. Hugs to you and Sophie!

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  13. Sharing your pain and sending you courage dear friend. Healing thoughts sent to both of you.

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