Wednesday, December 7, 2011

Cupcakes and Cotillion

The annual Mother/Son, Father/Daughter Cotillion made me feel very proud. I could barely walk after the dancing, though!




And the cupcakes? These were red velvet and chocolate, made for my dearest friend Moye's pottery show and sale. See her work and website here.



Carol of the Day

Is there a sweeter voice than Alison Krauss? Perhaps there is, but this is so beautiful, it's worth suffering through the initial ad to hear her and Yo-Yo Ma performing The Wexford Carol.

Hoity Toity Hoi Polloi


I have a friend who jokingly says that instead of reading real books, one could read about the books in the New York Review of Books and get by. After spending four hours at the lacrosse field today, bundled up against the early December California cold, I collapsed on my bed tonight and opened the December 8th issue of the Review and started flipping through. Generally I skip the reviews of history books, the discussions of Islam at the Met, the biographies of obscure World War II generals and convoluted economic theory and head straight for discussions of poets or great literary figures. I once sat, enraptured, reading about a perverse lion in Africa who copulated with dead lionesses and otherwise acted as no natural animal might. That article showed up months later in an anthology of the best American essays, a fact that I felt a bit proud of -- like I'd somehow discovered this weird and wild thing. I know you're probably shaking your head that I'd collapse into bed with such reading fare, and while I do consider myself a bit of a literary snob, I don't want you to feel intimidated, so I'll also confess to consuming huge quantities of romance as a teenager. I joined reading clubs like an addict (remember Book of the Month? Quality Paperback?) -- for at least two years I received a carton of eight "novels" from the Harlequin Romance Book Club every month, books that I read alongside the more rigorous Austen and Faulkner and Knowles and Bronte and Salinger.

Where am I going here? Oh. I'm collapsed on the bed, and this particular issue of the Review is sort of dry; I'm  flipping through it, really, secretly glad to be doing so as they tend to pile up, and this one doesn't look like it's going to have anything that's going to interest me, when I started reading a review of Michael Lewis' nonfiction book titled Boomerang: Travels in the New Third World. The reason why it caught my eye is because the title of the review itself was written in large type at the top, How We Were All Misled, and underneath is a photo of the leaders of France, Greece and Germany. A small bankrupt town in California is also mentioned in the review, as is our former governator, Arnold Schwarzenegger. Lewis' book explores the collapse of the European economies, including Ireland, Greece and Iceland, but he draws on the American one as well, and it was all very interesting and very edifying and very terrifying, too (but not as interesting, edifying and terrifying as the Satanic lion).

Reader, I read the entire review (written by John Lancaster) and now feel as if I don't need to read the actual book (written by Michael Lewis). I'm thinking, too, that perhaps if you're reading this post, you don't have to read the review or the book! How neat is that?

Here's an excerpt that I found the most compelling, toward the end of the article:

I think, though, that the failure of responsibility was linked to a failure of agency -- the individual's ability to affect the course of events. An enormous number of people today feel as if they have very little  economic agency in their own lives; often, they are right to feel that. The decisions that affect their fates are taken far above their heads, and often aren't conscious decisions at all, so much as they are the operation of large economic forces over which they have no control -- impersonal forces whose effects are felt in directly personal ways.


It is difficult to feel responsible when you have no agency. many of the people who did stupid things -- who did things on that 0-10 scale -- did so because everyone around them was doing them too, and because loud voices were telling them to carry on. The Icelanders who bought cars with foreign currency loans were sold them by financiers who promised that it was a good idea; the Irish who bought now-unsellable houses on empty estates were told, by builders and bankers and the state, that this was a once-in-a-generation opportunity; the Greeks who are, at the time of writing, furiously rebelling against austerity measures were falsely told that the state could afford to look after them, and arranged their lives accordingly.


The collective momentum of a culture is, for more or less everybody more or less all of the time, overwhelming. This is especially true for anything to do with economics. The evidence is clear: it is easy to mislead people about money, and easy to lead members of the public astray both individually and en masse, because when it comes to money, most of us, most of the time, don't know what we're doing. The corollary is also clear: the whole Western world misled itself over debt, and the road back from where we are goes only uphill.


The whole notion of failure of agency is what fascinates me, and I'm going to think about it -- later. I don't know about you, but if not a bodice-ripper, I'm at least going back to my Michael Ondaatje.


Tuesday, December 6, 2011

Epilepsy and My Child



Looking forward to the webinar on December 13th, I wrote a brief essay in this month's Epilepsy and My Child Newsletter. You can read it by clicking HERE and scrolling down. My piece is titled Adolescence: The Developmental Milestone That Came on Time. The other articles are of interest, too, and we hope you'll register for the free webinar!

Carol of the Day

Here's something eclectic -- Rufus Wainwright in plaid and a gorgeous opera singer --



Thank you, Becky, from Suburban Matron (one of my favorite and funniest bloggers on the internet).

Monday, December 5, 2011

What I've Been Working On --


Forgive the repetitious posting of this flyer, but I am hoping to encourage many people to sign up for the December 13th webinar that I and my friend and colleague Jennifer have been working on along with Project Access and the Epilepsy Foundation. The webinar is FREE; you only need to register by clicking on the link in the flyer. Also, the webinar will be relevant to all children with special healthcare needs facing puberty and adolescence, so I'd appreciate you sending the information to your friends or anyone else who might be interested.

I hope to "see" you there!


Strategies for Success:
Communicating with Your Developmentally Disabled Child
During Adolescence and Puberty

Parents of children with severe epilepsies not only deal with the issues associated with epilepsy as a condition, but they may also face challenges with their child being unable to communicate verbally or having cognitive and developmental issues. Despite having a severe form of epilepsy, children continue to grow and will enter puberty and adolescence as any child would. Parents may be unsure how they are going to handle this stage of their children’s lives. Two parents, Elizabeth and Jennifer, will share their stories and our certified expert, Courtney, will provide helpful information for parents and youth on ways to communicate effectively during the pubescent stages and adolescent years. Also, the latest addition is Dr. Janelle Wagner, a psychologist who will provide information and data on the effects of epilepsy and relative conditions in adolescents and young adults.

Moderator: Elizabeth Aquino, Parent
Presenter: Jennifer Bertram, Parent
Featured Speaker: Courtney Kowalczyk, M.Ed.
Scientific Expert Dr. Janelle Wagner, PhD (Just Added)

Some topics that will be addressed:
Communicating with your child about his/her body changes
Social appropriateness and private behaviors
Assisting your pre-teen/teen with proper hygiene and care

.
If you are a parent who has questions or concerns about your child, please join us for this very informative webinar.
Link to register: http://ncpawebinar1.eventbrite.com/   

At the end of the webinar there will be an extended live Q & A session on the Epilepsy Foundation's eCommunities website.

Have questions? Submit your questions to the Forum before the webinar. Selected questions will be answered during the live event.

The information presented during this webinar is not intended as a substitute for medical advice. Please consult your physician about all clinical care and treatment decisions.

Hosted by the National Center for Project Access of the Epilepsy Foundation. This event is funded by the Health Re-sources and Services Administration’s Maternal and Child Health Bureau under grant # U23MC08582.

Carol of the Day

Thanks to Suzy C., one of my comrades-in-arms, here's a new carol/Christmas song to share with you. Thank you, Suzy!

Sunday, December 4, 2011

What I've Been Working On -- Please Spread Around and Attend

I work part time for Project Access with my friend and colleague Jennifer Bertram. We've been busy organizing and working on the following webinar. I would really appreciate you spreading the word to all those you know who have children and adolescents with developmental disabilities. And if you don't, but just want to hear how goofy I sound, register (it's FREE!) and listen!

December 13, 2011 1:30PM - 3:00PM pm EST

Strategies for Success:
Communicating with Your Developmentally Disabled Child
During Adolescence and Puberty

Parents of children with severe epilepsies not only deal with the issues associated with epilepsy as a condition, but they may also face challenges with their child being unable to communicate verbally or having cognitive and developmental issues. Despite having a severe form of epilepsy, children continue to grow and will enter puberty and adolescence as any child would. Parents may be unsure how they are going to handle this stage of their children’s lives. Two parents, Elizabeth and Jennifer, will share their stories and our certified expert, Courtney, will provide helpful information for parents and youth on ways to communicate effectively during the pubescent stages and adolescent years. Also, the latest addition is Dr. Janelle Wagner, a psychologist who will provide information and data on the effects of epilepsy and relative conditions in adolescents and young adults.

Moderator: Elizabeth Aquino, Parent
Presenter: Jennifer Bertram, Parent
Featured Speaker: Courtney Kowalczyk, M.Ed.
Scientific Expert Dr. Janelle Wagner, PhD (Just Added)

Some topics that will be addressed: 
Communicating with your child about his/her body changes
Social appropriateness and private behaviors
 Assisting your pre-teen/teen with proper hygiene and care
.
If you are a parent who has questions or concerns about your child, please join us for this very informative webinar.


At the end of the webinar there will be an extended live Q & A session on the Epilepsy Founda-tion's eCommunities website.
Have questions? Submit your questions to the Forum before the webinar. Selected questions will be answered during the live event.

The information presented during this webinar is not intended as a substitute for medical advice. Please consult your physician about all clinical care and treatment decisions.

Hosted by the National Center for Project Access of the Epilepsy Foundation. This event is funded by the Health Resources and Services Administration’s Maternal and Child Health Bureau under grant # U23MC08582.

Carol of the Day

Johnny Mathis' voice is one of the first one hears piping out of department store speakers and Target elevators when the season rolls around, but when I hear it I inevitably think back to my childhood and the rich and joyful Christmases that my parents gave my sisters and me. I remember my long red and white checked dress and white turtleneck that I wore one year, Pecan Puffs on a plate in the dining room, the white electric candles in every window of the house.

Enjoy --

Saturday, December 3, 2011

About Town

Melrose Avenue street art





Casualty of southern California Santa Ana's -- Wednesday night
3rd Street, Los Angeles





Fancy BMW driven through fence in Chase Bank parking lot
3rd Street, Los Angeles
(woman in car, looking a lot like Tori Spelling but not, wearing what appeared to be pajama bottoms and large sunglasses, ran into bank exclaiming that she'd had an anxiety attack and needed a cell phone to call work)


Carol of the Day

This one is dedicated to all my relatives on my father's side of the family who are gathered in New York as I speak, making pittule, the fried dough delicacy beloved by the Italians. I wish that I were there with everyone and send my love --

This is also the only Christmas recording of the great Enrico Caruso, taped in 1916.

Friday, December 2, 2011

Bad Sport: NOT an inspirational post


I'm inspired today by Ms. Moon of Bless Our Hearts's post titled Attitude Adjustments. You might want to click on over there and read first before finishing here. Or not. It's up to you.

I, like most cognizant folks of contemporary culture, am saturated with doing good, feeling good, feeling virtue, feeling Zen-like, seeking to understand the positive pathways of the brain and how to ensure them, being mindful, counting my blessings, listing things to be grateful for, etc. etc. Every now and then, though, I'd like to surrender. I'd like to say to those people whose kids are really young or newly diagnosed that you know what? It's not going to get better. It's going to get worse. Your mind and your nature will be chipped away to such a fine point, you'll be capable of pecking at any closed door and slipping through. You'll be bitter and angry and self-righteous and you'll get things done, but you'll also do a lot of crying in the shower and sliding down the proverbial wall. 


I would like to be the John McEnroe of parents of disabled children. I'd like to curse at the ref when I miss a shot, scream at the fans and maybe even throw my racket and storm off the court. I'm out of here, I'd shout, I'm through with this shit.


I suppose it's actually time to meditate.


Carol of the Day

Kimmie commented yesterday that she likes sad carols in a minor key the best. I might agree -- while I'm not sure if it's in a minor key or not, here's another of my favorite carols -- In the Bleak Mid-Winter -- music put to the words of the nineteenth century English poet Christina Rosetti (James Taylor also does a gorgeous rendition, the carol perfectly fashioned for his mournful voice).

So beautiful -- and check out the collars on the choirboys of Gloucester.

Thursday, December 1, 2011

Christmas Carol of the Day

With apologies to all those who hate Christmas -- no bad feelings! -- I am happy to post the first of twenty-four carols of the day, a tradition I started four years ago on this blog. If you have any suggestions for carols that you love, please let me know. I am interested especially in weird or particularly gorgeous renditions of holiday songs.

One of my favorites is this -- turn it up LOUD -- and forgive the cheesiness of the video. When The Queen belts out O Tannebaum, I always get chills.

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