a moon, worn as if it had been a shell
Wednesday, December 6, 2017

The Grace of Caregiving

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I'm typing this from Sophie's hospital room in Santa Monica where we arrived yesterday early afternoon after a visit to the pedi...
24 comments:
Monday, December 4, 2017

Stop Kumbayaing and WAKE UP!

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Dear Representative or Senator, As a constituent who cares deeply about issues affecting people with intellectual and developmental dis...
6 comments:
Wednesday, November 29, 2017

Alchemy and Anxiety

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I don't know about you, but I feel so weird these days, so out of sorts, so self-conscious and aware and filled with adrenaline and ...
19 comments:
Sunday, November 26, 2017

This Blog Still Exists

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In a 1984 Paris Review interview with the writer James Baldwin, he was asked whether he found it easier or more difficult to writ...
28 comments:
Thursday, November 16, 2017

The Samsara of Healthcare

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I was scanning through some old posts from a few years ago and noticed one that is particularly relevant -- STILL -- to today. It has to...
9 comments:
Wednesday, November 15, 2017

The United States Medical System, Part Two in a Series Through Photos

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23 years, beginning in infancy, four different benzos (Nitrazepam, Ativan, Klonopin and Clobazam), zero seizure control, high depende...
4 comments:
Sunday, November 12, 2017

Sunday Reverie

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San Jacinto Wildlife Preserve Lakeview, CA photographer: Carl Jackson  I’ll tell you how the Sun rose – A Ribbon at a time –...
9 comments:
Wednesday, November 8, 2017

How We Do It, Part I've Lost Count

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Look who decided to show up for dinner!  That's what Oliver said in his inimitable Big O'ish way last night when Saint Mirth...
16 comments:
Sunday, November 5, 2017

Update from the Cloister

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See enough and write it down Joan Didion Can I tell you who Sophie is and how I know? Can I tell you that she looks direct...
13 comments:
Monday, October 30, 2017

Magnetic Resonance Imaging

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It looked like a flower a jewel a prism a kaleidoscope of pink and red and green a mustard yellow. So beautiful it brought tears to m...
39 comments:
Saturday, October 21, 2017

Everyone Needs Cake™

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I'm baking cakes again. I made cupcakes today, too. I've hatched a plan to make two specialty cakes a month and del...
6 comments:
Thursday, October 19, 2017

The Gig Economy

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In Ring Three of The Greatest Show on Earth: So, in keeping with the general zeitgeist, Sophie will be driving Uber from here on out. ...
15 comments:
Wednesday, October 18, 2017

The United States Medical System, Part One in a Series Through Photos

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October 5, 2017 MRI of the brain with anesthesia Cedars Sinai Medical Center Sophie, 22 year old woman refractory epilepsy patient ...
11 comments:
Tuesday, October 17, 2017

REAL with Diane McDaniel

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Passion is the bridge that takes you from pain to change Frida Kahlo Last week, I sat in Diane McDaniel 's b...
7 comments:
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