How We Do It: Part XXII in a series

Filipendulous

Adjective: hanging by a thread

That's a leaf that was hanging on my windshield nearly all day, yesterday, as I drove about the city. Blown from the tree that overhangs the driveway and wet from the rain that fell off and on all weekend, the leaf clung to the window for hours, and I didn't want to clear it. Sophie was sick with the flu all last week, and as her fever spiked up and fell down, she had, paradoxically, no seizures. We discussed this last week -- the phenomenon of neurological abnormalities abating during periods of illness and fever, common among the autistic community and rarer in the epilepsy world. Around these parts, though, we were quiet, our breath was held collectively. No seizures. No seizures for a week. No one uttered a word about this -- not The Husband, not The Babysitter, not Henry, not Oliver and other than the passing observation on this blog, neither did I. Because that's how we do it around here. We hold our breath, superstitious, wary of the other shoe dropping, the proverbial jinx. 

On Sunday I went to a daylong class about the Four Noble Truths of Buddhism, taught by the great Sharon Salzburg. The first Noble Truth is the truth of dukkha, which roughly translates into anxiety, suffering, and dissatisfaction. Dukkha attests to the human tendency toward dissatisfaction with circumstances and an expectation for something different. The second Noble Truth is the origin of dukkha, or the cause of suffering, and this is craving, attachment, aversion. I thought about the first and second Noble Truths as I drove around yesterday, the yellow leaf filipendulous on my windshield. I thought about them, again, later in the afternoon, when Sophie had a huge seizure for the first time that week, right before dinner and then again, when she had another one during dinner. Oliver stood in the doorway, his face grim and asked is she all right? when it happened, again, twenty minutes later. As Sophie jerked, her face contorted into a grimace, the phlegm of the past week's flu and congestion rattling in her throat, I felt fear come flooding back, the other shoe, dropped, the jinx a prophecy. I had a minutes-long internal debate on whether or not to administer Diastat. I wondered, frantically, if she had something else, a secondary infection. She had no fever, though. I panicked, briefly, about her dying. I acknowledged that, as I have so often done and watched the thought slip away. 

A week free of seizures and then a flurry of them, and I thought, at first, that it might be some cruel joke, the brain rushing to catch up, a perverse reversion to normal. 

When the adrenaline calmed, I sat for a long time at Sophie's side and watched her breathing, her eyes open but vague, and I felt resigned to all of it, or perhaps not resigned but, rather, cool. 

The third Noble Truth is the truth of the cessation of dukkha, the removal, absence or non-arising of suffering, and the fourth outlines the path to the cessation of dukkha. Earlier in the day, as I'd driven around the city, the leaf clinging to the windshield, I had thought about the four Noble Truths, how the experience of giving birth to Sophie, to receiving her diagnosis, to looking for help for her, to fighting for her and to watching her seize, over and over and over again while simultaneously living was a near perfect parallel to the path of the four Noble Truths and that I was infused with them quite beyond my own consciousness. 

Sophie had another big seizure this morning during breakfast, and when we brought her to her room, both Henry and Oliver, dressed as SuperHorse and SuperChicken, stood in the doorway, anxious. Is she all right? they asked, and I assured them she was. They left for school, and an hour later, so did Sophie. When I went outside to my car, the leaf, of course, was gone.