Reader, we are fine so far after two of the biggest earthquakes we've felt in the twenty years I've lived here. Last night I went...

This might be a record for my not blogging -- more than a week since I've bloviated about the various goings-on in my life and not f...

The World I Live In I have refused to live locked in the orderly house of       reasons and proofs. The world I live in and believe...

The whimsy of the picture belies the terror I feel at navigating the dark recesses of Sophie's brain. I am not a scientist. Sophie...

There's something sort of meta about that photo, isn't there? What does meta mean, anyway? Among, with, after. Something like th...

Seizure days. ESES days. How do we get through them? Still, I have no idea. Still. Still! What would it look like to get through them? I...

So many people sent me the recent — let’s call it crowd-sourcing — article detailing a young girl’s hideous epilepsy story and asking fo...

La Jolla, CA 1996 The thought crossed my mind the other day that Sophie's epilepsy is a beast, a monster, and she is not her epi...

It's a big world. That's what I tell myself when I read about or hear about things that are otherwise incomprehensible. It...

That's a spooky picture, isn't it? Sophie's the white-capped one in the background, lying in her bed. She was wired up today...

I found this in a shoebox of old letters at the back of my closet. I've always carried around a tiny notebook in which to jot observ...

A friend of mine in the epilepsy community contacted me this morning from Canada. She had just learned that the drug Frisium (same dru...

23 years, beginning in infancy, four different benzos (Nitrazepam, Ativan, Klonopin and Clobazam), zero seizure control, high depende...

It looked like a flower a jewel a prism a kaleidoscope of pink and red and green a mustard yellow. So beautiful it brought tears to m...

this photo was not staged You know how it goes. No matter how hard I try, I can't shake the southern Italian superstitious woman i...

Ocean Park Beach photographer: Carl Jackson I've been reading Nobel Prize winning writer Svetlana Alexievich's Voice...

You didn't think I'd just let things go, did you? Just as they always have, and do, they percolate, lay down in layers on top o...

So, um, the hives came back. My instincts are evidently still pretty sound. That big 'ole bolus of Vimpat was the wrong approach. ...

One very fucked up EEG Doogie Howser and I had a good pow-wow over Sophie. The plan is to hopefully get her back to baseline (which is...

Unless you've been living under a rock (and I've said it before, I understand ), you've seen the various articles coming out...