Realm of Caring Magic Night

 

I took that screen shot the night before last as I sat watching and listening and weeping and smiling through Realm of Caring’s tribute fundraiser. It was the one-year anniversary of Charlotte Figi’s death — Charlotte of the eponymous Charlotte’s Web cannabis medicine. That mighty child and her mother Paige, along with Heather Barnes Jackson, the Stanley Brothers, Ray Mirzebegian and many, many others changed countless lives, saved countless lives, including our Sophie’s. As one of the original families to use Charlotte’s Web, we were asked to make a short video to include in the night’s online festivities. 

Read more here.

Rest in Peace, Charlotte Figi

We are all bereft, gutted, filled with sorrow. Charlotte Figi, the daughter of Paige Figi, died yesterday of probable complications related to Covid-19. Charlotte was patient zero in the cannabis revolution, and Paige a mother, a friend, a mentor, a revolutionary, a life-saver and inspiration. All of our lives -- all of your lives -- has been changed by this young girl and her mother. That Charlotte should die of this cruel virus that seems to be just picking people off is bewildering and even surreal. In the epilepsy community, Charlotte's death is particularly tragic as so many of our hopes and dreams and certainly our gratitude and love is wrapped up in this child's soulful eyes and sweet smile. She is our child, too, and I think I speak for many when I say thank you to Paige and Greg and Matt and Max and Chase for sharing Charlotte with us.


Molta forza e coraggio to Charlotte's brave family. We will never forget your girl, the garden you planted, and the flowers that bloomed from it. We love you and hold you with our community -- Charlotte's web that you so beautifully spun and whose strands are stronger than loss and grief because they are made of love.