Showing posts with label hospitals. Show all posts
Showing posts with label hospitals. Show all posts

Tuesday, June 5, 2018

Rules for Caregiving Post "Wisdom"* Teeth Surgery




  1. Wake to the sound of a seizure at 5 am, a guttural moan and rattling, and run/hobble to patient's bedroom to assess situation
  2. Administer large dose of CBD and CBDa via new protocol
  3. Think who lives like this? while making sure patient is comfortable. Question pertains both to patient and caregiver
  4. Turn on light (essential rule for those who struggle with psychosis in early morning hours)
  5. Drop essential oil Frankincense into palms of hands, cup patient's nose for several seconds, caregiver's nose and then massage patient's feet
  6. Recite secular prayers and pretend to administer Reiki
  7. Note that second seizure does not happen, a small improvement from previous days
  8. Change diaper and notice that hydration might be necessary
  9. Worry and wonder 
  10. Contemplate whether hydration might be necessary in hospital as patient slept most of previous day, having been drugged into oblivion because of too many seizures
  11. Think who lives like this? as pertaining to patient. Curse wisdom teeth, so ridiculously named.
  12. Text friend from East Coast who emphasizes importance of hydration.
  13. Contemplate which hospital to take patient to for hydration, drawing upon 23 years of experience in caregiving
  14. Contemplate waking College Boy or Brother to drive patient and caregiver to hospital
  15. Contemplate the various pros and cons of hospital admittance
  16. Read text from friend: Take her in
  17. Continue contemplation of big city hospitals, private insurance and who takes MediCal as secondary
  18. Curse the American health care system to ward off financial fears
  19. Retrieve large syringe used to administer pharmaceuticals, bottle of cold Pedialyte from fridge and towel
  20. Sit at patient's bedside and carefully syringe 5 ml of liquid into patient's mouth until 8 oz is down the hatch.
  21. Help patient to cough up mucous with newly purchased $369 portable home suction machine
  22. Think who lives like this? pertaining to both patient and caregiver throughout home hydration
  23.  Lie next to patient and gradually realize that patient is not seizing like she had in previous days, has drunk an appropriate amount of electrolyte-balanced liquid and is resting peacefully
  24. Rest peacefully next to patient while College Boy and Brother sleep unaware of caregiver and patient drama on other side of wall
  25. Rise from patient's bed at 7:00 am, make coffee for caregiver and oatmeal for patient to hopefully eat later. Sip coffee and contemplate the universe
  26. Bring patient 8:00 medication and coax another 8 oz of liquid into patient's mouth. 
  27. Note, again, that no seizures have occurred
  28. Think who lives like this? while planning a trip down to Santa Ana to visit a dispensary that has a good stock of CBDa. It's called Fiddlers Greens.

This has been a Public Service Announcement.









* The "wisdom" teeth are so-called because one is presumably wiser when they appear in late childhood, early adulthood. I call bullshit.

Tuesday, May 1, 2018

Benignity and Trickery



I'm going to tell you about what might happen to siblings of kids with complex medical needs. No matter how conscious you are about giving them equal time, things slip through the cracks, stuff is blown off, "little stuff" is overlooked. Oliver complained about pain in his finger for a year. I acknowledged it, but I also blew it off. I blamed it on diet or inflammation. You need to stop eating junk, I might have said. How bad could it be? Both Oliver and his brother Henry are strong in every way. They are strong and sensitive. They are honest and funny as hell. Like their sister, except they haven't gotten as much attention. It turned out that Oliver has an aneurysmal bone cyst. Benign but tricky. Today he had a second surgery to remove it as the one in December didn't work. The tumor came back, began eating into his bone. Hopefully, today's intervention will last. I sat by the bedside in the recovery room for hours, running my hand through his hair, watching my nearly grown boy sleep off the drugs they gave him. He made jokes in his sleep, smoothed all my rough edges worn thin by time in hospitals those weird hours ticking by. Precious child. Brave children.

I'll be catching shit for the "inflammation" and "too much sugar" talk -- but that's okay. We all need to be humbled and set straight.

Power to the siblings.


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