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I'm leaving in the morning for New York City, my favorite place in the world (except, maybe Florence, Italy) and won't be blogging for a few days. I'm going to the People Against Childhood Epilepsy gala on Thursday night. I helped found this organization many years ago -- you can read more about it by clicking here.
I've packed my bags, stacked up the old New Yorkers to catch up on and somehow micro-managed my kids' various activities so that The Husband doesn't go too nuts trying to do it all. I placed a call to The Neurologist and wrote her an email asking for some advice and clarification about this new drug that Sophie has been taking for a few weeks. I haven't heard from her, yet.
This is what I think: I DON'T KNOW.
Sophie has been having fewer and less intense seizures of a certain kind and more of another. She walks with a quicker step and looks pretty bright-eyed. But those big seizures, occurring 1-3 times per day just kill me. All of us. We're throwing those little pink pills in her mouth faithfully, but it feels more like this:
![](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgzsE3nYg3EcnbMortPSRK_awRJBi0EGG-vDisD5lF9CyrRhhCQOnJzw0Uj_7I7CEgnmHf24briDGpe4XKRFg_gCJl-Bi7KY1Bn7S8yLqZhmrv12NOOgBPHXgNLfH1M-B0pb3yQ6MEfeWw/s400/dart+board.gif)
The dart appears to have completely missed the board.
Maybe it's too early to tell?
It's a crap shoot -- the anti epileptic drug game, and we've played it before.
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Let's hope we raise some money on Thursday night to refine the game.
Raise plenty of money, have fun and try not to worry. :)
ReplyDeletei've been wondering about that new drug...
ReplyDeletegreat good luck!!! i wish i lived closer. i'd come in for a cup of tea at your break.
but say hello to one of my favorite cities too. love that apple of big.
i hope so too.
ReplyDeleteTry not to worry while you're away - I know that's maybe impossible - I hope your trip is a success!
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