Tuesday, February 24, 2009
Off To a Beloved City
I'm leaving in the morning for New York City, my favorite place in the world (except, maybe Florence, Italy) and won't be blogging for a few days. I'm going to the People Against Childhood Epilepsy gala on Thursday night. I helped found this organization many years ago -- you can read more about it by clicking here.
I've packed my bags, stacked up the old New Yorkers to catch up on and somehow micro-managed my kids' various activities so that The Husband doesn't go too nuts trying to do it all. I placed a call to The Neurologist and wrote her an email asking for some advice and clarification about this new drug that Sophie has been taking for a few weeks. I haven't heard from her, yet.
This is what I think: I DON'T KNOW.
Sophie has been having fewer and less intense seizures of a certain kind and more of another. She walks with a quicker step and looks pretty bright-eyed. But those big seizures, occurring 1-3 times per day just kill me. All of us. We're throwing those little pink pills in her mouth faithfully, but it feels more like this:
The dart appears to have completely missed the board.
Maybe it's too early to tell?
It's a crap shoot -- the anti epileptic drug game, and we've played it before.
Let's hope we raise some money on Thursday night to refine the game.