Good News from the Edge

Still life with Onfi and the Lone Ranger

Sophie and I both have colds!

This is the reason why Sophie struggled so for a few days, and now that it's actually settled in, she's much better. True, the Diastat is still doing its magic, keeping her nerve endings sluggish, but her pattern is a ferocious bout of seizures before symptoms. With a full-blown virus, including fever, she generally has no seizures at all. Even high fevers (which she hasn't had in many years) make her seizures better. Smoke that, you Seizure Afficionados! I know you've heard it before, but some kids with epilepsy or autism or both have improved seizures or even behaviors when they're feverish. That's been Sophie's pattern since she was an infant. In the days building up to a virus, she will have concentrated bouts of seizures and then none at all or far milder ones for the remainder of the illness. Are your eyes glazed over? Mine are. In the same way that some women act surprised when their period comes or even exasperated that they, once again, have no products to stem it, even though such occurrences happen regularly each month for decades -- well -- I forget in the dark hours of the night or early morning when Sophie is seizing unexpectedly that she might very well be coming down with a virus. To be fair to myself, it's not always a virus and countless bad days in her life are attributed to nothing, but you'd think I'd know the pattern after nearly twenty-one years. Sophie honestly hasn't been sick, sick in a very long time (which I imagine has something also to do with CBD as it has both anti-inflammatory and anti-microbial effects), so I must have gotten a little rusty.

Do I sound giddy? I am! Giddy with relief! And we're trying a new product this week -- a different strain of cannabis that I hope will improve her SIT U AH CEE ON even more. Stay tuned.

Love,
The Happiest Person With A Cold and Cough on Earth