Wednesday, September 11, 2013

Those overlooked regarded

Phillippe Petit,


Anything Can Happen

After Horace, Odes, I, 34

Anything can happen. You know how Jupiter
Will mostly wait for clouds to gather head
Before he hurls the lightning? Well just now
He galloped his thunder cart and his horses

Across a clear blue sky.. It shook the earth
and the clogged underearth, the River Styx,
the winding streams, the Atlantic shore itself.
Anything can happen, the tallest towers

Be overturned, those in high places daunted,
Those overlooked regarded. Stropped-beak Fortune
Swoops, making the air gasp, tearing the crest off one,
Setting it down bleading on the next.

Ground gives. The heaven's weight
Lifts up off Atlas like a kettle lid.
Capstones shift. Nothing resettles right.
Telluric ash and fire-spores boil away.


by Seamus Heaney

Tuesday, September 10, 2013

Medical Marijuana Update: Part 6,749,234 in a series



I participated in a webinar today with a national epilepsy group for which I've worked for many years. The guests were Josh Stanley and Page Figi, both Coloradans featured on the recent CNN special titled Weed. Page is the mother of the little girl Charlotte whose refractory seizures have been dramatically reduced since she started taking the high CBD medical marijuana that the Stanley brothers produce on their farm in Colorado. There were only a few of us on the call, and it was very spirited. I'm not sure how the other parents on the call felt -- some were from states that criminalize marijuana, so their chances of even trying the stuff are quite slim -- but I felt like I was pulsing with electricity. The feeling reminded me of the enormous rushes of adrenaline and probably cortisol I've felt over the years whenever the prospect for a new treatment for Sophie arose. Even if there's great hope attached to that prospect, it's still stressful and uncomfortable, and I felt, for much of the day, as if I were jumping out of my skin. I think all the mindfulness meditation has actually made me acutely aware -- mindful -- of the effects of stress on my body. I'm not talking about the literal weight that has accumulated but the actual physical characteristics of stress: my racing pulse and heartbeat, my brain quick and poised, my thinking sharp, my ability to articulate heightened emotions, and a gnawing feeling in my stomach that has nothing to do with hunger.

I've felt like that for much of the day, mainly because I am frustrated by the overall inaccessibility of this product for our children and because I am excited that it might very well help Sophie's seizures. Throw in the fact that we're at the forefront of something that could very well be revolutionary for people with uncontrolled epilepsy -- well, you should understand that state of my nerves.

Did you know that many of the children who are using it successfully have been weaned from their AEDs?

I don't even want to type that in a normal font it's so outrageously wonderful.

I have to settle down, though. I have to be patient. Josh Stanley said that maybe, quite possibly, the high CBD stuff would be available in California by the end of this year and certainly by the beginning of 2014. He spoke about education and advocacy. He cautioned about activism. It's a process, and it's happening.

Help me wait. Talk me down. Still my heart. Unshiver my skin. Bandage my wounds. Lay me down.

C.J. Jung,*** Praying Mantis, and Car Pondering

C.J. Jung fills a kettle in his workshop

We were about halfway to school when Noah, who was sitting in the front seat, put his finger on the windshield and said, Look it's a praying mantis without a head! 

I said, Really? and Oliver, sitting in the back seat, said, Yeah, you're right, Noah. And did you know, Mom, that after mating the female bites the head off the male? Maybe she does it so he can't eat the babies.

I seem to remember something like that, Oliver. I said, but who the hell knows? I'm fifty and haven't picked up a science text in a quarter of a century. There is always much to ponder in the car with children, especially when there's a headless male insect on your windshield, so that's what I did, the rest of the way to school --  'Bye, have a great day! -- and then when I dropped off mail at the post office and still later when I went to pick up some dry-cleaning. I have a lot to ponder right now in my life and would guess that most of us do have much to ponder. Most of it isn't bloggable, but it's definitely ponderable. My clothes weren't ready, so I sat in the car and read email for a bit, closed my eyes and opened them to see what appeared to be a praying mantis, a pale green and delicate creature, scamper up the top of the windshield and out of my sight.

This one definitely had a head.






***The photo of C.J. Jung has been sitting on my desk for months. I like it and thought it fit in some weird way with this post. Go with it the way you will.


Monday, September 9, 2013

Imagine That

Elizabeth Taylor as Maggie the Cat in "Cat on a Hot Tin Roof"

I know ya'll think of me as the Ellen Burstyn character in Requiem for a Dream, but what if I told you to imagine me as Elizabeth Taylor in Maggie the Cat's white slip, languorously standing in the doorway of my bedroom, come hither --

Do you know that the Powers That Be called this morning and cancelled the NEUROLOGICAL appointment? They acknowledged that they had gotten sufficient information from The Neurologist (Sophie's regular one) that I had directed them to call when in my former Ellen Burstyn mode and had decided that yes, indeed, Sophie was sufficiently disabled to warrant continued SSI.

Imagine that, my friend Jenni texted me earlier when I told her.

Yes, imagine that!

Thank the animal gods, thank the universe, thank my lucky stars, the good Lord, Jesus Christ, Allah, Muhammad, the Buddha, and Ellen Burstyn.

Thank Elizabeth Taylor for giving me an out.

Punch Drunk, Insane and Bitter, Part 2


I've posted the above photo of Ellen Burstyn as the diet pill-addicted mother in the creepy movie Requiem for a Dream a number of times because I absolutely feel like I look exactly like that (well, maybe exactly with dark hair) during certain trying times in my life.

Like this morning.

When you read this, I will be at a clinic somewhere in the hinterlands of Los Angeles, with Sophie. Sophie will be receiving a NEUROLOGICAL exam to ascertain whether she is, indeed, disabled and whether she qualifies and can continue receiving Supplemental Security Income. I wrote about this on an earlier post that you can review here, if you like. Scroll down through the other jibber-jabber to read specifically about the NEUROLOGICAL exam.

In my mind, I can put on my best Ellen Burstyn in Requiem for a Dream nightmare face and laugh maniacally about how the jig is up! Sophie is going to receive a NEUROLOGICAL exam, and our long eighteen plus years of pretending that those pesky seizures are more than fig newtons of our imagination is going to be revealed! It was a good run while it lasted! A crazy, kooky run! Hopefully, Sophie won't completely blow the show and start reciting Wallace Stevens poetry or do one of her amazing back flips!

In reality, I'll be taking notes to share with ya'll later today. I bet you can't wait.


Sunday, September 8, 2013

Virgo (August 23 to September 22)






I think I'm celebrating my fiftieth birthday until the Virgoan era is over on September 22nd. Today, my dearest in the whole dear world took me to an amazing brunch at an amazing restaurant. I drank a Bloody Mary and a glass of champagne.



I broke my no-sugar fast (one week successful and I will begin it again tomorrow) and nibbled on an amazing pecan cinnamon bun or danish. I ate ground sirloin with a fried egg on top and the most delectable jus (not juice) I've ever tasted.


I opened presents -- incredible presents, really. Art and jewelry that is art, poetry magazine subscriptions, and a purple purse to die for. I laughed myself silly and cried a bit, too. When the time came for blowing out the candles, and I was just about to do it, Cara yelled, "Wish BIG!" and I stopped and everyone stopped singing and then I took another deep breath and wished

SO

BIG, that you couldn't possibly know what I'd wished.

Well, maybe you could imagine.

It was the most perfect morning a fifty year old woman could possibly have, and I just can't possibly do it justice -- or these women who bless my life.


Saturday, September 7, 2013

A certain mad rectitude



Here's Sophie, playing on the iPad with Saint Mirtha. It's Saturday and it's hot here in the southland. Oliver and I got up early this morning and drove into the valley where it's even hotter so that Oliver could try out for fall baseball. We decided to try a different league this year as the one we've been a part of for so long is sort of, kind of, getting on our nerves. There are too many politics, too many people who take themselves far too seriously, and while I expect that's true of most baseball leagues, at least we won't know anyone in this one and I can be oblivious because that's what I'm seeking these days if you haven't noticed. I picked Henry and his friends up from their first high school dance last night, and the car was electric with laughter and youth and, frankly, normalcy. I'm grateful that Sophie has an iPad this morning and that she can use it, however inconsistently. I'm grateful that I have Saint Mirtha here on Saturdays so that I can take my boy to try out for the sport that he loves. And I'm grateful that Henry is happy in his new high school, going to dances, raucous with his friends, a life ahead of him.

Here's a poem:

Say It Straight

What we would
and what we can say
stray as in a dream;
a certain mad rectitude
creeps in, by which something simple as an apple
can never be determined
wholly edible.
The crisp act is deferred,
the object blurred by scruples.
The more we cherish clarity
in principle, the more it is
impossible. Will enamel
ever strike the fruit?
Will Eve grow wild and forgivable?
For it's unlovable
to talk too long with snakes,
whose reasons fork
the more the more
she hesitates.

Kay Ryan, from Flamingo Watching, 1994

Reader, I know you think I'm not the gratitude kind of blogger, but let's relent and you tell me what you're grateful for today.

Friday, September 6, 2013

Bush, painting his toenails***



Allow me a political rant.

Humor my thinking out loud, my perhaps ignorant, inchoate thoughts.

If you don't allow it or don't humor me, please have a wonderful weekend!

It's the Syria thing again -- the morass this entire country is facing, is already struggling inside of -- what to do? what to do? what to do?

I saw one of those Facebook posts the other day of a picture of George W. Bush's smug mug with the words Miss Me, Yet? and this time I actually did feel physically ill as opposed to just disbelieving. I've been thinking about how even those of us who generally support President Obama and share many of the same values disagree with his and John Kerry's decision to strike Syria. I'm thinking that at the very least if it's so imperative that we do this, if we send target missile strikes (is that what they're called?) to kill people and thereby punish the lunatic who runs the country, why is there room for discussion? If it's so imperative, why not just do it? I know. I know. Because this is a democracy and these important matters deserve discussion. I'm thinking that the time it's taking to figure it out means there's time. There's literal time to do something different, something not so wildly incendiary, so violent, so in keeping with the bravado and bluster and bullshit of the Bush administration and the decade of war that has followed.

I like this piece, written by Timothy Egan:

He’s there in every corner of Congress where a microphone fronts a politician, there in Russia and the British Parliament and the Vatican. You may think George W. Bush is at home in his bathtub, painting pictures of his toenails, but in fact he’s the biggest presence in the debate over what to do in Syria.
Read the rest here.

I imagine the President is basically damned if he does and damned if he doesn't, and I guess it's the sign that democracy is still working if he took it to Congress (although conservatives have already derailed even that, saying it's a sign of weakness). I guess debate is healthy. I've heard all the arguments for and against, but my convictions that violence only begets violence and that nothing new is under the sun and that nothing new will come of it haven't changed. I say stuff flowers in the missiles.



***I wanted a photo of one of Bush's paintings to go right up there, but every time I tried to download one, the internets wouldn't allow it which sort of creeped me out as much as the painting does. It's probably for the best, though, not to allow the crude paintings of a mediocre man and war criminal to sully this sweet and gentle place. Would that the old war criminal had stuck to painting his toes instead of conjuring death, torture and destruction. Right?





Rude, unbending, lusty


Yosemite, 2009

I can't stop thinking about these lines of Walt Whitman's:



I saw in Louisiana a live-oak growing

I saw in Louisiana a live-oak growing,
All alone stood it and the moss hung down from the branches,
Without any companion it grew there uttering joyous leaves of dark green,
And its look, rude, unbending, lusty, made me think of myself,
But I wonder'd how it could utter joyous leaves standing alone there
     without its friend near, for I knew I could not.
And I broke off a twig with a certain number of leaves upon it, and twined
     around it a little moss,
And brought it away, and I have placed it in sight in my room,
It is not needed to remind me as of my own dear friends,
(For I believe lately I think of little else than of them,)
Yet it remains to me a curious token, it makes me think of manly love;
For all that, and though the live-oak glistens there in Louisiana solitary in a
      wide flat space,
Uttering joyous leaves all its life without a friend a lover near,
I know very well I could not.

Walt Whitman (1919-1892)

Thursday, September 5, 2013

Air Traffic Control



I'm not going to write a whole post about what it's like having three children in three different schools, one child being completely dependent whose bus must be met every single day the moment it arrives despite that child being eighteen years old. That would be a boring post. I also won't kvetch and complain about how busy I am, when I'm perfectly aware that the reason I'm so busy, so tied down with minutia and craziness is because of choices, choices that I am very fortunate to have. That would be boring as well. I'm also not going to write a whole post about waking up this morning with the blues and then reading an article about rural poverty, about working people who qualify for food stamps and are barely scraping by yet will have their food stamps cut or taken away completely because of greedy bastards in Congress (yes, I'll call the Republicans who wish to cut food stamps greedy bastards) and feeling completely, utterly fortunate and not a tiny bit abashed that I should groan and moan about my life. That would be a political post, and I don't feel like it. What I will include here, though, is a screen shot of an email that I received from a friend after that friend (Dorie) and another friend (Heidi) and I had exchanged about three million texts trying to figure out the carpool situation for tomorrow, Friday, when our freshman need to not only go to school and then come home, but go back to school for a dance and then come home. Dorie, Heidi and I have three children each, so nine between us and if you turn up your nose at the breeding we've done, well, read no further. We are kick-ass, a well-oiled middle-aged female machine:



Reader, are you a breeder and if so, how well do you work as an air traffic controller?

Everything

Yesterday was a day where parenting, politics, poetry, disability and despair intersected (see the title of this blog above), but I won't pull the bow across the violin and let you hear it. Instead, I'll tell you about the pork chops that I dredged in egg and then old-fashioned Progresso bread crumbs and how I didn't give a damn about how processed those crumbs were, how I sauteed the thin chops in olive oil and served them with rice pilaf -- Syrian rice, we called it as children and a bowl of lettuce, tomatoes and vinaigrette. Henry and Oliver loved the dinner, hallelujah and even told me as I fed Sophie in the dining room (they were in the kitchen) where I had moved her to her wheelchair since she had had a huge seizure earlier and couldn't really sit on the stool, even strapped in, but she continued to have them and was drippy, clammy and I felt a pinch of disgust, not at her but at the situation, a pull of anger, the larger Troubles and then I told her, I told myself it's all right, it's ok and

everything you love is right here, in these two rooms.

Literally, everything.

Wednesday, September 4, 2013

Archaic Face



It's been all day, heat, talk, family, rattling chains, a cage. You don't have a single wrinkle, the aesthetician said, the light hot, nothing to hide. Her fingers fluttered over, tracing my face, leaving thin, cool tracks. The word glisten makes me shiver. For in it is no place that doesn't see you, she might have said, or I said, or I remembered.


Archaic Torso of Apollo

We never knew his stupendous head
in which the eye-apples ripened. But
his torso still glows, like a lamp,
in which his gaze, screwed back to low,

holds steady and gleams. Otherwise the curve
of his chest couldn't dazzle you, nor a smile
run through the slight twist of the loins
toward the center that held procreation.

Otherwise this stone would stand mutilated and too short
below the translucent fall-off of the shoulders,
and wouldn't shimmer like a predator's fur;

nor shine out past all its edges
like a star; for in it is no place
that doesn't see you. You must change your life.

Rainer Maria Rilke (1875-1926)
translated by Galway Kinnell

Tuesday, September 3, 2013

My Syrian Grandfather

Here is my Syrian grandfather and his family, in the early part of the twentieth century. I don't know whether they had left Syria, yet. My grandfather Charles is the young man on the far left, in the back row. I have always been enamored of the woman on the right's wasp waist. I believe she might be my Aunt Hafeezah, remembered for her plastic-covered furniture, dusty hard candies and wet kisses. My grandfather immigrated to the United States in 1907. I am told that he was very handsome, then, so handsome that as a lifeguard on Coney Island, he was picked to be an extra in a Valentino film. He died when I was sixteen, so my memories of him are not clouded. He smoked unfiltered cigarettes-- a lot -- even after lung cancer and the removal of part of his lung. He had strong and often angry views, would holler about them with his children (my mother and my aunts and uncle). He was loud, cursed in Arabic (in fact, the only Arabic word I know is shit, pronounced a guttural cutta). He pushed meat through a meat grinder attached to the kitchen table, grew eggplants and string beans in a backyard garden and called me Rosalita because I looked like the other side, my father, the Italian Catholic who married his youngest daughter.



This is a picture of my Mississippi grandmother and her family. My grandmother, Ida Mae, is the little one in the front, shielding her eyes from the sun. She grew up on a cotton farm in the Delta. All of her brothers had Biblical names, and I believe the baby in her mother's arms is my Aunt Bessy Lucille who married a man named Artie when they were around fourteen years old. Aunt Bessy and Uncle Artie were married for nearly seventy years, I think, and I remember they were always holding hands. My grandmother died when I was around 38 years old and she was 92. She was tall and graceful, soft-spoken and dear, the definition of a lady. She told us stories in her soft southern accent, stories of growing up in the south, how she was bitten by a snake, how her brother cut the spot, sucked the blood out and then ran through the fields to get her father. She had pale blue eyes, suffered from macular degeneration in her old age, had a tinkly, gentle laugh.



So, this man


met this girl



when he was a traveling salesman, peddling lingerie in the south. He married my grandmother when she was eighteen years old and took her back to Brooklyn, where she lived with him and his mother, at first. Ida Mae learned how to speak Arabic, cook Arabic food and then raised five children in a tiny brownstone in Brooklyn. When I asked her many years later why she'd married Grandpa when she was so young, she told me Well, honey, he was tall, dark and foreign.

I'm telling you this story now because I can't get them out of my mind these days, particularly as I watch and listen and read about the conflagration in Syria. I am one-quarter Syrian. That quarter is from the city of Homs which has been in the news of late as one of the tinder boxes of the civil war there. My grandfather Charles was a Christian Arab who fled persecution with his family more than a century ago, and he never let us forget whose side he was on, barking his views from the Barcalounger he seemed to be reclined in for my entire childhood. Israel, Palestine, Jews, Muslims, Christians -- these were words I heard over and over on those weekends my cousins and I ran through the house and outside to the garden, or sat and colored while our grandmother shaped raw lamb into kibbeh and our aunts and uncle argued.

I don't know what to think about the whole thing other than it's a fucking (there's really no other word) tragedy of a colossal scale. Pure madness. All of it. I can't say I feel comforted to see President Obama sitting grimly next to John McCain as they collude on how to persuade our legislature to vote that we strike Syria. I can't say that I agree with them. I don't see the sense of bombing as punishment. I can't say I feel neutral, either, when I read of hundreds of thousands of people brutally murdered, citizens of one country killing one other barbarically and millions displaced, wandering.

I remember the fighting and yelling in my own extended family, though, over what seems like the same old shit.

Pure madness. All of it.

I don't know if I have any relatives in Syria, but I imagine someone whose blood and genes I share is running around there, throwing rocks or bombs or fleeing with her children to neighboring countries or even receiving the gas meant to kill from her own government.

I don't know what to think.

غائط
(Arabic for shit)



What my friends and I are doing now that our children are all back to school

especially for Sally M.



Kiki di Montparnasse, Therese Treize de Caro et Lily
Brassai, 1932



Hallelujah.

Hallelujah.

Hallelujah.

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