Showing posts with label LEND. Show all posts
Showing posts with label LEND. Show all posts

Wednesday, October 6, 2010

What I learned today


I spent the day, again, as a fellow for LEND (Leadership Education in Neurodevelopmental Disabilities), and just like the other Wednesdays, I thought I'd highlight something interesting, something that stuck out and that struck me.

What I learned today is that persons with Down Syndrome in the Netherlands, as well as other folks with intellectual disabilities, have improved access to their communities, and that those communities work hard to include these people and help to foster their independence. The speaker who talked about this was an American nutritionist, married to a Dutch man, and she had traveled quite extensively in the Netherlands. She spoke of an afternoon where she saw many, many people with Down Syndrome riding bicycles to their work from their group home, and said, too, that it wasn't an uncommon sight to see people with intellectual disabilities navigating the cities on their own.  It was her "unscientific" opinion that the community fostered by this inclusion was far greater than here in the United States where inclusion is "the law" but still struggles in the culture and in practice.

I have to say that it's my non-scientific opinion that I, and a lot of people like me, spend an inordinate amount of time "defending" the rights of our children or young adults with disabilities. I have had top educators in the school system, principals even, use the "economic" argument -- that educating the severely disabled somehow "takes money away" from those who are "typical." But that's for another day...

A trip to Holland might be worth it, after all! (And this is an inside joke, meant for those who share my skin-crawling dislike of the Welcome to Holland letter.).

Wednesday, September 22, 2010

What I learned today



My fellowship with LEND -- Leadership Education in Neurodevelopmental Disabilities --  is proving to be fantastic. Each hour of lecture and exercise is more interesting than the next, and I'm surrounded by an incredible interdisciplinary group of psychologists, neurologists, psychologists, occupational therapists, physical therapists, dentists, administrators, Title V folks and parents. I'm so excited about it and will do my best to share bits and pieces as I go. Please know that I'm not going to post charts and statistics, except for a few -- the source of this information is an incredible faculty of physicians and professionals devoted and dedicated to improving the state of healthcare for children in this country, particularly those who are disadvantaged, live in rural areas and have developmental disabilities.

What struck me today were POVERTY STATISTICS and their close correlation with developmental delay and  disability -- and then further down the line, enormous economic loss. In other words, how much we, as citizens, land up paying when basic healthcare needs are not met.

1)Children in poverty in the United States: 18%
                          
2) Those state/cities whose politics are the most progressive have the LEAST poverty (San Francisco is one example). The Bible Belt -- the most politically conservative states -- have the HIGHEST POVERTY RATES.

3) Since Johnson's Great Society, poverty rates have risen during conservative/Republican eras and fallen during progressive/Democratic administrations with NO exceptions, EXCEPT for the over-65 year old group. Why do you think?

MEDICARE
chew on that for a while

4) The moral imperative of PRIMARY CARE PREVENTION AND SOCIAL SAFETY NETS

5) Poverty is one of the strongest indicators for developmental disability.

There's my spiel. Stay tuned.

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