At some point in the waning years of the last century, Sophie was on her eighth or ninth drug, a drug that wasn't yet FDA-approved but that The Neurologist At The Time thought worth trying. I received the drug from a pharmacy in London, a tiny little shop on a cobblestoned street with a 17th century sign hanging outside that swung in the English rain. You figure out which part of that sentence is fiction. I've told this story before. The drug was a white powder and came in a foil packet called a sachet,
and after I carefully poured the contents out, I cut them with a razor blade to get just the right amount for the baby, about enough to fit into a 1/4 teaspoon. I dipped my finger into the powder and put it on my tongue. Powerful enough to stop seizures but bitter enough to spit out. I gave it to the baby.
Know that the word irritable
is frequently used in neurology literature as a possible side effect.
An Earlier Neurologist listened to my complaints about the Baby's constant fretting and said, You have to figure out what your tolerance is as far as irritability,
after which I lit the fuse that connected the telephones of the last century that we were using and blew him up. That should be parenthetical.
On the third day and then night of the drug in the sachet
, Sophie began screaming all night long, flailing her arms and arching her back. She screamed until she became hoarse. You can't imagine what a hoarse infant sounds like -- just air but more -- air that you can hear, and I spoke into the air as I walked with her, up and down, up and down. Enough. This is enough. No more. We will not do this.
The next morning I called The Neurologist At The Time. The Neurologist At The Time was what they called cutting edge,
no pun intended, knives and docs, docs and knives, and I liked him. I was going to say love
but that would be fiction. I called him up and said, The Baby is beyond irritable. She is psychotic, if babies can be psychotic. She is still seizing. She is now on two non-FDA-approved drugs and is being weaned from Phenobarbital. How many babies do you know on this combination? Could the three drugs be interacting?
The Neurologist At The Time said, That's a very interesting idea,
and the words travelled as sound through a wire connecting us, across the country (I was visiting my parents in Atlanta and The Neurologist At The Time lived in New York City) and assembled themselves into block letters that floated out of the can I held up to my ear and spun round my head.
T h a t ' s a v e r y i n t e r e s t i n g i d e a.
I have a Bachelor's degree in English and French literature. I've also read an indeterminate number of novels, including all the classics in French.
I've studied Mandarin Chinese, excelled in modernist poetry and wrote an honors thesis on Pascal's Pensees.
The only science class I took in college was Zoology, and during my senior year I thought I might round out the piles of novels and poetry that lay everywhere in my room by taking Waste Management. I got a D in Calculus. Yet, evidently, as per The Neurologist At The Time, The Cutting-Edge Neurologist, I was having interesting ideas
about my nine-month old daughter's brain and its response to seizure drugs from other continents.
I never got over this, by the way.
The landscape changed in a moment, over the telephone. The tiny little mother mind™
was born in that moment, and I'd describe the birth as a kind of star trail like the photo the Bird Photographer took in the middle of the California desert, a time-lapse of stars burning or dying or traveling as the world spins on its axis, but that might be a mixed metaphor, and I don't know physics either or even photography. Black holes. No man's land.
This is not fiction.
Stephen Hawking said, The greatest enemy of knowledge is not ignorance, it is the illusion of knowledge.