Showing posts with label crowd-sourcing. Show all posts
Showing posts with label crowd-sourcing. Show all posts
Saturday, October 13, 2018
My Response to The NY Times Epilepsy Story
So many people sent me the recent — let’s call it crowd-sourcing — article detailing a young girl’s hideous epilepsy story and asking for the public’s help, that I’ve lost count. That we live in a period where literally everything is a reality show makes me ill. Crowd-sourcing medicine? Give me a break. This is my response to the parents via the New York Times and the f’d-up medical business community that pretends to Science:
Don’t cut out your child’s brain until you’ve tried cannabis medicine. “Fixing” your child is the hardest, most fruitless journey you will embark upon. The opposite of that is not acceptance. There is healing in the legion of people who know your suffering. Healing and curing are entirely different things.
Wednesday, January 31, 2018
Crowd-Sourcing with My Peeps with an Update
I'm working on an exciting new project that has the potential to be a game changer and really help caregivers of children with special healthcare needs and disabilities. I need your help.
I'm compiling a list of people in the Caregiver/Special Needs Healthcare/Disability Community and would love your suggestions.
Here are the categories:
- Real Parents (like yourselves or people you know)
- Creative people who are also parents or involved with caregiving
- Famous people: celebrities, writers, etc.
- CEOs
- Organization Leaders that are also parents
- Big Foundation execs
- State and Federal Special Education Leaders
You don't have to know these people personally, although if you do, that's great (and I'll contact you separately to get more info) -- just know of them. I need names. If you could sit and really think about this, jot down names and either contact information or titles, I would really appreciate your list. If you're one of these people, please let me know!
I appreciate it and look forward to your lists!
**Please email me your lists if you don't want them "public." If you do have ideas on people, that's fine to leave their names right in the comments. My email is elsophie@gmail.com
**Please email me your lists if you don't want them "public." If you do have ideas on people, that's fine to leave their names right in the comments. My email is elsophie@gmail.com
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