The Tower of Power

What is this?

Get a little closer:

a little closer:

What you're looking at is a 30-day supply of locosamide, recently valued at well over $700. Better known as Vimpat (according to my friend A, it sounds more like the name of a small car), we finally have it in our possession. Thanks be to the good Lord above, because a non-profit organization came to our aid and picked up nearly half of the  first month's co-payment (when I find out whether it's ok., I'll publicly name said organization that has reduced me -- or augmented me -- to tears of gratitude). In the meantime, I'll be "working" with Anthem to add the drug to the formulary of covered drugs. If all goes well, the Vimpat will give Sophie some relief without too many awful side effects.

Thanks for being so supportive of my kvetching freak-out the other day. I wrote what I meant and I meant what I said. We have a serious problem in this country of ours, a problem that I think brings shame upon us as a nation. Even though this is a piddly old blog about a piddly little life here in the crazy, beautiful city of Los Angeles, and I'm willing to concede to my self-centered-ness in even having a blog, I know for a fact that I am just one of many. One of millions, actually, who struggle each day in an abysmal system that has for too long masqueraded as "the greatest system on Earth."

(the Tower of Power was made for me by Henry, our resident Lego genius. There were flowers on top, and it was called The Tower of Flowers, but I took the flowers off temporarily to better pay homage to the feats of skill and absurdity it took to get that bottle.)