Showing posts with label Grady Doctor. Show all posts
Showing posts with label Grady Doctor. Show all posts

Wednesday, February 19, 2014

Things I've Noticed About Medical Marijuana, Sophie and The World in General



When I put on Sophie's socks in the morning, she doesn't startle when I touch her foot and then go into a seizure.

When I put on Sophie's pants in the morning, she doesn't flex her foot so rigidly that I can't get her pants leg over it.

The Los Angeles Times newspaper reports that the case against the archdiocese of Los Angeles regarding pedophile priests and Cardinal Mahoney's specific participation in shielding these men, shuffling them around the church and then hiring legions of fancy lawyers to defend him is now settled. Many of the abused will receive monetary damages, the Catholic church had to borrow from cemetary funds to pay the damages and Cardinal Mahoney never went to jail.

When she wakes up in the morning, Sophie doesn't spend forty-five minutes having myoclonic seizures.

Sophie has no body odor or clammy hands and feet.

Not a day goes by that some article or another appears about medical marijuana and its effects on epilepsy. I'm noticing that The Powers That Be are rattling their sabers, bemoaning the lack of evidence, rattling on about double-blind placebo studies blah blah blah and never once mentioning that our children have been subjected to dozens of drugs in what surely must be an experimental fashion as the combinations are near endless and no one seems to know apparently what these drugs do and have done to our children's precious bodies.

The boys and I have eaten dinner with her for weeks and weeks, and we haven't had to go into rescue mode when Sophie has a seizure at the table.

Red plants produce green conical blossoms that break into yellow flowers all on their own.

My favorite medical expression on the inserts of anti-epileptic drugs: Mechanism of action unknown.

I haven't had to drag Sophie down the hallway to her room after a seizure in weeks and weeks.

You should read these two beautiful posts before the month of February is out:

American Promise
I Just Looked Around and He's Gone


Reader, what have you noticed today?









Tuesday, October 30, 2012

Thursday, September 27, 2012

Blog Call

Dorothea Lange: House Call, 1939
Farm Security Administration camp unit at Merrill, Oregon
The camp nurse introduces doctor to mother of sick baby.


The other day, I got the following comment on the post titled Gertrude Stein, IEPS, conservatorships and books:

Today I am unlurking myself to you. I have read your blog from start to finish over the last few weeks as I just discovered you via Grady Doctor. I am a fourth year medical student currently applying for residency in child neurology. I would LOVE to hear your advice for a new, naive, idealistic, hopefully soon to be resident about what you need from your doctor and how I can provide that to the parents and children I meet. (Next time you don't have anything to write about, a post in my honor?) J/k. Kind of. Anyhow. Thank you for sharing as I feel I have already learned much about Sophie and what must be many other special needs children like her. Children that I will hopefully be honored to meet and care for.
O.K. I don't know this person, but I love her already, and I hope she's reading this right now!

I love you already!

One of my secret wishes has always been to implement a requirement in medical schools and residency programs that the student spend a good two weeks or more with a family dealing with a child with a medical diagnosis and/or disability. I imagine that person sleeping on the couch and getting up in the night to observe the routines of the parents -- whether that is giving meds to a sleeping infant, suctioning a child, entertaining a child who decides to wake and stay awake at 2:00 in the morning, holding a child while she has a seizure and then sitting next to her for hours, making sure that she's still breathing, etc. I imagine the morning coming and the student continuing to observe -- like a fly on the proverbial wall -- as the family goes about their day, dealing with schools and insurance companies and doctors' visits, and siblings and marriage and everything else.  I believe there are programs like this out there - particularly in the area of diabetes and sickle cell anemia, but I wish that it were standardized because I believe it would give the student incomparable experience and truly affect how she deals with her patients and their families. I think it would not only impact "bedside manner" but also how the doctor makes decisions about treatment and care of the child.  But I digress --

I love the person who wrote the above comment even more for considering a residency in child neurology and have already replied that I hope she'll narrow that down to becoming an epileptologist (there's an incredible shortage of pediatric epileptologists). She'd get to deal with kids like Sophie and parents like ME -- lucky, lucky, lucky!

What I'd like to do in today's post is ask any of you parenting a child with a disability -- or not -- to answer her, share what you need from your doctor or what you wished you might have received from your doctor and perhaps some advice for this "new, naive, idealistic, hopefully soon-to-be resident."

Don't be shy! Here's your chance to influence and affect a new generation! I know that those of you who read here regularly have many different perspectives and experiences, so I hope you'll be candid. As a further incentive to answer, I'm going to either do a live strip tease on Skype or send you some virtual chocolate cupcakes. (Just making sure that you're paying attention)




Wednesday, August 17, 2011

Leaving Hate to the Professionals (Grady Doctor's Title)


I'm inspired by a fantastic real live doctor who blogs at Reflections of a Grady Doctor to take a pledge and stick to it for the rest of the month. Do it with me! Hold me to it!

Read more HERE.

Here's the pledge:


I, Elizabeth Aquino, do solemnly pledge to allow no insults directed toward or about myself to leave my lips for the rest of the month. This includes but is not limited to references about the following:
  • butt size
  • hair length
  • baby weight
  • belly circumference
  • skin surface
  • crows' feet
  • height
  • complexion
  • salary
  • material possessions
  • marital status
  • relationship status
  • grades
  • achievements in comparison to someone else
  • achievements of your children
  • size of your house
  • make of your car
  • mistake from your past
  • compliments to others with reflexive insults to yourself in same breath
The good news is that you can liberally make reference to the following:
  • Craziness of your own family members (but only in presence of other family members)
  • Annoying quirks of your significant other (but only in absence of your significant other)
  • Any person who stars on any reality television show including but not limited to any Kardashian, Snooki, the people on the Parking Wars show, and any of the housewives Real or Basketball. (Exception to this rule: "Swamp People" and the daddy on "Pawn Stars.")
 ***(play the anthem below and shake what your mama gave you if you commit)***


Vowed on this day in August 2011: Elizabeth Aquino


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