Radio Interview and a Perfect Statement from the Charlie Foundation about Charlotte's Web

Hilton Head, 2008
The "She in There, She Know" photo

Here's yours truly:



If that doesn't show up, you can go Here to listen.

I have to tell you that it's probably best that I didn't get to engage in further discussion with the neurologist who was also on the call. With all due respect, I found her position -- well -- the usual. Ya'll know me. I'm still holding onto the hope that one of these neurologists is going to shed the gobbledy gook and kick up their heels in joy that something good has happened. I'm also a tad sad that the part where I talked about all of you extreme parents -- the real Tiger mothers and fathers -- was edited out. Basically, I noted that we're very, very tenacious and unafraid of obstacles -- that our lives dealing with the various systems of care have already been so burdensome that most of us, particularly the black-humored ones, sort of expect more bullshit and absurdity. Oh, I didn't use any profanity and no one was aware that I was standing on a surfboard dressed in a Mad Hatter Costume under which was a string bikini.



And here's the wonderful Jim Abrams' statement through his Charlie Foundation about Charlotte's Web:

For the record, here is The Charlie Foundation's position on marijuana derivatives for epilepsy treatment:

The Charlie Foundation was founded on the principle that the medical standard of care needs to be be a process of informed, joint decision making between a patient or caregiver, and his/her health care provider. We have the highest regard for the value and necessity of science. We have much less sympathy for the intervention of government in this process.

What's more, science doesn't always lead the way. Frequently there is a painstaking period while science takes a great deal of time to substantiate or rule out what may be fact. Many don't have the luxury of that time. That's when factors such as anecdotal evidence and risk/benefit ratio need to be considered without government interference. That's where it appears we are with CBD today.

If we had waited for a randomized controlled study to be published on the efficacy the ketogenic diet, Charlie would have been seventeen years, rather than 20 months old before he started the diet, and I don't know that we would still have him today.

What's more, to paraphrase "first do no harm": "To pretend that multiple drug treatments for children with difficult to control epilepsy are science and then argue against CBD is the cruelest of double standards."

Jim Abrahams, The Charlie Foundation



Thank you, Jim and thank you Madeline Brand for airing our story!

Riding the Wave of CBD

I just taped an interview this morning with Madeline Brand of KCRW, a local public radio station. You can hear me at 12:00 noon, Pacific Time on Brand's show Press Play.

Here's the link.

I only shook like a leaf afterward but wonder if I sounded like I was surfing the biggest wave in the universe. At least they didn't see me in a bikini, though.

Parisienne

It was a glorious day here in Los Angeles with big white puffy clouds interspersed with some threatening ones, a blustery wind and crystal clear air. I snapped the above photo on my walk to the dog groomer this morning. I particularly love that the car is called Parisienne and is decorated with skulls. Oliver told me that it was inappropriate. 

I'm wasted.

The place where we get Sophie's CBD oil has been shut down by Los Angeles County. You can read about it here. So far, it doesn't look like we'll be shorted the CBD, but the whole thing is scaaaaaaaaaary and not a little frustrating.

A person from KCRW contacted me and will be interviewing me on the Madeline Brand show sometime tomorrow morning. If you're in the area, my interview will be pre-taped, but I think her show is on around 11 or noon. As soon as I get the link, I'll report back so you can hear me. Hopefully, I'll sound smoky, sexy, with a certain je ne sais quoi lilt in my voice that masks the inappropriate anger. Parisienne with skulls.

The guys from the newspaper that I told you about earlier just left after hanging out with me and Sophie for an hour or so. They took a lot of photos and video of me jabbering on in my Mad Hatter costume, so as soon as that comes out I'll post the link.

Cause it's all about me.

No, what it's all about is the safe access to medical cannabis oil for everyone.

Hey, Georgia politicians, Los Angeles County officials and other backward folk:

Did you hear that?

It's about the safe access to medical cannabis oil for seizures.

Boy Conversation #2,368,921

There's a constant war going on in the car between The Power That Is (that would be myself, The Driver) and the Big O. It involves the radio. I prefer KCRW -- both the talk part and the music. The Big O prefers KISS FM which plays the same three or four songs over and over, although sometimes he'll switch to the station that plays fairly decent "old" rock and roll or another pop station that plays one or two songs over and over in between commercials. This morning, I managed to keep The Big O from twiddling with the dial because of an enthralling episode of This American Life, a story that recounted the discovery of pork bung masquerading as calamari. Pork, what? The Big O asked, incredulous? Bung, I said, evidently a slang term for rectum. He still looked confused. I stared straight ahead and said, you know, butt. For once, the Big O was quiet and listened avidly. He didn't touch the dial. When it was over, he shook his head and said that can't be true. That's just stupid.

Later, as we waited in the drive through line at In 'N Out, he switched the station from KCRW to KISS FM which was playing the song of that guy, according to The Big O, that Miley Cyrus had twerked to. I pretended to not know what twerking was, mainly to see if he really knew (which he did), and then I asked him what he thought about that whole incident and he replied the following, quite priceless answer.

Mom, you know it was MILEY CYRUS? You know her, right? First she was Hannah Montana? Then she started singing? Then she got old? Now she's twerking? 

He shook his head. I felt compelled to tie together pork bung, bad pop music, the perils of old age and twerking, but I refrained and shook my head. That can't be true, I said, that's just stupid. Oliver turned that guy off so we could roll down our window and order our lunch.