Tuesday, February 24, 2009

Off To a Beloved City

I'm leaving in the morning for New York City, my favorite place in the world (except, maybe Florence, Italy) and won't be blogging for a few days. I'm going to the People Against Childhood Epilepsy gala on Thursday night. I helped found this organization many years ago -- you can read more about it by clicking here.

I've packed my bags, stacked up the old New Yorkers to catch up on and somehow micro-managed my kids' various activities so that The Husband doesn't go too nuts trying to do it all. I placed a call to The Neurologist and wrote her an email asking for some advice and clarification about this new drug that Sophie has been taking for a few weeks. I haven't heard from her, yet.

This is what I think: I DON'T KNOW.

Sophie has been having fewer and less intense seizures of a certain kind and more of another. She walks with a quicker step and looks pretty bright-eyed. But those big seizures, occurring 1-3 times per day just kill me. All of us. We're throwing those little pink pills in her mouth faithfully, but it feels more like this:

The dart appears to have completely missed the board.

Maybe it's too early to tell?

It's a crap shoot -- the anti epileptic drug game, and we've played it before.

Let's hope we raise some money on Thursday night to refine the game.


  1. Raise plenty of money, have fun and try not to worry. :)

  2. i've been wondering about that new drug...

    great good luck!!! i wish i lived closer. i'd come in for a cup of tea at your break.

    but say hello to one of my favorite cities too. love that apple of big.

  3. Try not to worry while you're away - I know that's maybe impossible - I hope your trip is a success!



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