Monday, December 5, 2011

What I've Been Working On --

Forgive the repetitious posting of this flyer, but I am hoping to encourage many people to sign up for the December 13th webinar that I and my friend and colleague Jennifer have been working on along with Project Access and the Epilepsy Foundation. The webinar is FREE; you only need to register by clicking on the link in the flyer. Also, the webinar will be relevant to all children with special healthcare needs facing puberty and adolescence, so I'd appreciate you sending the information to your friends or anyone else who might be interested.

I hope to "see" you there!

Strategies for Success:
Communicating with Your Developmentally Disabled Child
During Adolescence and Puberty

Parents of children with severe epilepsies not only deal with the issues associated with epilepsy as a condition, but they may also face challenges with their child being unable to communicate verbally or having cognitive and developmental issues. Despite having a severe form of epilepsy, children continue to grow and will enter puberty and adolescence as any child would. Parents may be unsure how they are going to handle this stage of their children’s lives. Two parents, Elizabeth and Jennifer, will share their stories and our certified expert, Courtney, will provide helpful information for parents and youth on ways to communicate effectively during the pubescent stages and adolescent years. Also, the latest addition is Dr. Janelle Wagner, a psychologist who will provide information and data on the effects of epilepsy and relative conditions in adolescents and young adults.

Moderator: Elizabeth Aquino, Parent
Presenter: Jennifer Bertram, Parent
Featured Speaker: Courtney Kowalczyk, M.Ed.
Scientific Expert Dr. Janelle Wagner, PhD (Just Added)

Some topics that will be addressed:
Communicating with your child about his/her body changes
Social appropriateness and private behaviors
Assisting your pre-teen/teen with proper hygiene and care

If you are a parent who has questions or concerns about your child, please join us for this very informative webinar.
Link to register:   

At the end of the webinar there will be an extended live Q & A session on the Epilepsy Foundation's eCommunities website.

Have questions? Submit your questions to the Forum before the webinar. Selected questions will be answered during the live event.

The information presented during this webinar is not intended as a substitute for medical advice. Please consult your physician about all clinical care and treatment decisions.

Hosted by the National Center for Project Access of the Epilepsy Foundation. This event is funded by the Health Re-sources and Services Administration’s Maternal and Child Health Bureau under grant # U23MC08582.


  1. congratulations Elizabeth. This is a great service to provide. there are a lot of changes for the kids and the parents.

  2. Elizabeth. This looks like a wonderful thing. I'll put the word out around here...

  3. Thanks Elizabeth for taking the time to do this. I signed up and tweeted!

  4. Elizabeth, is this appropriate for parents of kids who have special needs other than epilepsy? My daughter is intellectually disabled and is on the autism spectrum too. She is 7 but I worry already about puberty, etc. Physically she is pretty healthy/typical but her understanding of things is at a very young level.

    Carrie T. -

  5. Signed up, on my facebook wall and tweeted...thanks



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