Today was the day that we went over to UCLA and checked Sophie in for the video telemetry that will determine whether ESES has reoccurred or whether we're just dealing with the usual mess.
I wanted to do a long, clever post and this morning, I took a lot of notes. But the fire within me is burnt out and all I've got is this:
I.M. Pei, the famous architect designed the brand-spanking new "Best of the West" medical building and if hospitals were churches this would be the GRANDADDY cathedral of them all. Absolutely incredible.
There's only one problem:
There aren't enough beds and we waited over seven hours for one to open up. (We were told over and over that when the hospital was designed it was over ten years ago and they just didn't plan for the growth -- wtf?)
Seven hours with Sophie in a stroller. After five of those hours, the EEG tech hooked her up with just the electrodes so we went back down to the lobby afterward to wait a few more.
One I.M.Pei Building
One Harp Player in the Lobby
A Meditation Room
A Peace Garden
Seven Hours Waiting
Four Giant Seizures in a Stroller
I had the thought that I was in an alternate "Dr. Strangelove" movie -- one where all the fancy donors and doctors and political figures sat around a table planning the place and FORGOT to make enough beds.
When we were finally settled in our room, our fabulous nurse, James, stood patiently listening to my rant and nodded his head.
"It's THE BEST IN THE WEST" he said, his voice dripping with irony and tact, repeating a poster slogan that is displayed all throughout the hospital.